Heart Attack Journal #2: I really didn... - Fun Beyond 10K & ...

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Heart Attack Journal #2

SkiMonday profile image
SkiMondayUltramarathon
21 Replies

I really didn’t think I’d be back here again.

After my first MI in August 2019, I really thought that the medication I was on would prevent a repeat of this. However, 3 ½ years on, it’s happened again. Seems that I’m in the small minority (less than 2%) for whom the standard medication doesn’t prevent another occurrence.

The idea with this post is to document my progress so that anyone who wishes to see how I’m getting on can do so without everyone getting lots of posts about it from me.

I documented my original experience in this post: healthunlocked.com/marathon...

After my first MI, I started on the standard medication (aspirin, ACE inhibitor, statin and PPI plus ticagrelor for the first year). Over the following 12 months, I very gradually built back, finally returning to running half marathon distance most weekends. About a year after the original MI, I experienced jaw pain (which can be a symptom of an MI) which resulted in me having a second angiogram. This found that my arteries were completely clear i.e. no change from when I’d had the stent fitted. The cardiologist told me that, if I did have another MI, the symptoms were likely to be those that I’d experienced the first time (a tight feeling across the chest in my case). Over the next 2 ½ years, I continued to build up, running three or four times a week, completing one 45 mile run (in 13.5 hours), four marathons and a few shorter races.

Which brings me to Sunday 16-Apr-2013, the date of the Newport marathon. With interruptions due to bad weather, going on holiday for a week etc, I wasn’t quite as prepared as I’d have liked but I was sure that I’d be able to beat the time of my slowest marathon. I took my usual approach of running it at a comfortable pace (although, towards the end, I did find the run harder than I would normally expect). As it turned out, I shaved 90 seconds off my previous best marathon time.

As soon as I stopped, I became aware of a sharp pain in the centre of my chest (i.e. not the same as the pain that I’d experienced the first time). I completed my post-run stretches, strolled back to my car to change out of my top (about 10-15 minutes from the finish) then sat down on a bench to see if that would relieve the pain. When that didn’t work, I decided to go and get checked out by the medics by the finish line before driving home. They ran an ECG, said that I needed further checks and took me to a local hospital by ambulance. Tests in the hospital confirmed that I’d had another MI (the normal troponin level is below 20, my first reading was 230, three hours later it was 2921). I spent a really uncomfortable night trying to sleep in the AMU ward (my chest still hurt and my legs were a bit stiff). I was told that I’d have an angiogram the following day (Monday) and would be going home on Tuesday.

Monday 17-Apr-2023 (day 1) I was transferred to a room in the cardiology ward where I had a much better night’s sleep. An echocardiogram was done which showed an ejection factor of 40%. Normal is above 50% although I think I was down to 40% after my first MI so it’s possible that this second event hadn’t done much more damage.

Tuesday 18-Apr-2023 (day 2) I’m last on the list for an angiogram today so “clear fluids only” after breakfast. By late afternoon, it’s clear that I’m not going to be seen today so I’m given some sandwiches.

Wednesday 19-Apr-2023 (day 3) I’m half way down the list for today so back on clear fluids after breakfast. Taken up to the X-ray room about mid-afternoon. However, another emergency case came in so I’m sent back to the ward.

Thursday 20-Apr-2023 (day 4) Second on the list today, so fluids only from midnight. Taken down about 10 am. Was due to go in around 11:45 but then another emergency patient turned up. That patient came out at 12:15. Then the staff went for lunch. It’s finally my turn at about 1:30. Seems that one of my main heart arteries (the LAD) is severely clogged. The congestion that’s built up in my original stent is cleared and a second stent is fitted further along it.

On discharge, I’ve been prescribed ticagrelor for the first year (at the full 90mg * 2 dose) then 60mg * 2 for the following two years. I’ve also had a beta blocker added to my regular heart medication (although my resting HR is now down to 42).

So, it seems that I should be OK for the next three years. My big concern is that, once the super aspirin is stopped, is the blockage going to build up again. It seems that the only way to check is with an angiogram but that won’t be done unless I have further problems (although it’s much less intrusive that having an open chest procedure, it still needs a lot of highly trained staff and there are risks involved so it’s not something that can be done just to check).

Although being on then off then on for three days is frustrating, I understand that emergency cases should take priority. In some ways, it’s good to know that I’m considered stable enough to be able to wait.

Friday 21-Apr-2023 (day 5) I’m sent home about lunch time. I was told that I’d be given a copy of my discharge notes and a sick note before I left. Unfortunately, I forgot to chase this up so I left without these. I’ve been told that I should receive a letter from Cardiac Rehab next week.

Sat – Sun (days 6 – 7) Went for a few gentle shuffles locally.

Monday 24-Apr-2023 (day 8) Had a phone appointment with a GP to discuss this. At this point, the GP hadn’t received anything from the hospital. I was, however, issued with a sick note.

Tuesday 25-Apr-2023 (day 9) Went for a longer stroll today. Although my pulse was OK for a while (around 80), it started peaking way too high (175). Seems I’m going to have to ease back for a while.

Wednesday 26-Apr-2023 (day 10) Cut today’s shuffle short because my pulse went up to 136.

Saturday 29-Apr-2023 (day 13) Received a message from my GP saying that my notes have been received from the hospital and that a copy has been left at reception for me to collect. Unfortunately, it’s a bank holiday weekend and reception won’t be open until Tuesday.

Tuesday 2-May-2023 (day 16) Finally receive a copy of my discharge notes. They confirm that I’ve been referred to Cardiac Rehab. Somehow, it’s no surprise to me that I haven’t heard anything from Rehab. After my first event, I have a phone number for the unit in my local hospital so I called them and asked if they’d received the referral. They’d heard nothing so I explained what has happened and they said that they’d contact the hospital in Newport. I then called the number from my discharge letter. It took me half an hour or so to get through to the right department. I then explained the situation and gave them the number of my local Rehab.

Wednesday 3-May-2023 (day 17) Went for a slightly longer shuffle today. Since the spike on day 10, my pulse has been nice and steady so I upped my pace a bit today. Even though I went a bit quicker, my maximum pulse was 76 so it seems that things are settling down.

Thursday 4-May-2023 (day 18) Received a phone call from my local Cardiac Rehab saying that I’d been referred to them by the hospital. Can’t help thinking that I may have had something to do with making this happen. Anyhow, my first appointment is on 19-May.

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SkiMonday profile image
SkiMonday
Ultramarathon
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21 Replies
TailChaser profile image
TailChaserMarathon

Thanks for the update SkiMonday. It sounds like you’ve had a very frustrating experience all round but fingers crossed you’re out the other side.

Dendev75 profile image
Dendev75Half Marathon

Sorry to hear this and what sounds like a long and frustrating few weeks. I hope things start looking up and you can start moving forward again.

MissUnderstanding profile image
MissUnderstandingHalf Marathon

I was thinking about how you were getting on earlier today when I was recycling my Forest of Dean race number! Thanks for such a detailed update. It sounds like things are moving in the right direction, despite the er-let’s call them challenges-with getting cardiac rehab involved and your notes getting to the right people. The NHS is wonderful but frustrating at times.

Wishing you all the best for the recovery. ❤️

Shake-and-run profile image
Shake-and-runHalf Marathon

Good to hear you are home and moving about. Good luck with your progress, I hope you continue to improve x

Freecloud profile image
FreecloudMarathon

Thanks for posting, steady as she goes.

linda9389 profile image
linda9389AdministratorMarathon

Good to hear you are seeing some improvement. You are obviously well informed and know what to look for this time round. I do hope that helps as you gradually build back up again 🙏

OldManRunning profile image
OldManRunningHalf Marathon

All the best for your recovery SkiMonday. Glad you are managing to shuffle at least 😁

SueAppleRun profile image
SueAppleRun10 Miles

It's quite a maze sometimes, trying to navigate through the hospitals systems, good recovery so far, healing thoughts being sent

Mudita11 profile image
Mudita11Half Marathon

Good to hear that things are starting to improve . You have answered something that I’ve often wondered about - if blockages can be seen by scans or only by angiogram. Glad you now have your appointment with cardiac rehab booked. Keep us informed and all the best for a speedy recovery.

Beachcomber66 profile image
Beachcomber66AdministratorHalf Marathon

You could have done without all of the anxiety and chasing around following discharge. That is a pattern I recognise from life generally; where you have a number of people or organisations involved in a situation, avoiding your case becoming stuck as it moves through system is very hard work at a time when you need calm. Well done for joining things up so quickly. Hopefully you can now move forward with more tranquility in your life.

roseabi profile image
roseabiUltramarathon

Best wishes xxxxxxx

SaskAlliecat profile image
SaskAlliecatHalf Marathon

oh wow SkiMonday! Thank you for sharing. Wishing you all the best in your recovery.

Cowladyrunning profile image
CowladyrunningMarathon

I have been wondering how you were doing. Sounds frustratingly slow to get seen but glad things are happening now. I guess it's difficult for communications to go between hospitals in different countries 🙄 Best wishes.

Oldfloss profile image
OldflossAdministrator

Phew... I am exhausted just reading this... the challenges after the event are enough to set you off again.

Thank you for this update... it is good to know that you are, hopefully on the way back to recovery....

You got out there and you shuffled successfully! Well done you ! xxx

cheekychipmunks profile image
cheekychipmunksHalf Marathon

You’ve had a tough old time SM. It’s been good seeing your walks on Strava, and much as you’re needing to take it steadily, it must feel good to be able to get out, at least for a little while. 🙏🏻

Shame you had all the chasing up to do; it surely makes life harder for everyone involved if things aren’t done when they should have been. Still, you sound calm and collected - you certainly don’t need any extra stress in your life.

I look forward to following your progress. Take lots of care. 😀

Cmoi profile image
CmoiMarathon

While obviously I wish that the circumstances that provoked your post hadn't happened SkiMonday , I must confess I really appreciate the detail in your update. When it comes to medical issues I'm one of those people who wants to know as much factual information as possible, not to be fobbed off with patronising fluff.

I really hope that your recovery now will be straightforward and rapid. xx

Instructor57 profile image
Instructor57

Good to see you are out and about again and it will be interesting to follow your journey with Rehab.Unfortunately mine consisted of telephone support only from my local hospital in which I was basically told to go out and walk.

Once I had my walks up to 40 minutes I was basically told I was doing great and discharged back to my GP .

I have since spoken to the brilliant team at Wolverhampton where my procedures were carried out and now have an appointment there with their rehab physiotherapist on Tuesday 16th May .

Fingers crossed you have a better and more structured rehab journey! 🤞

Decker profile image
DeckerUltramarathon

wishing you all good things Ski…

GTFC profile image
GTFCMarathon

Sending our thoughts and best wishes to you in your recovery 🙏

Katnap profile image
KatnapMarathon

Good to see your meds and body are starting to settle. Your fitness is sure to have had a positive impact on your recovery so far. Stay strong SM 💪💪

misswobble profile image
misswobbleMarathon

crikey! What a time of it you’re having 😬. I’m pleased to hear you’re back out there 🙂. Easing yourself back into running will help mentally and physically. The weather is warming up which should help matters 🙂🏃‍♂️💪👍

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