hi, does anyone have scarring and see black/dark grey blobs where damage has been done? And also has it ever expanded for you?
ophthalmologist is saying no change in my eyes (PED) all stable but what I am seeing is expanding. Feel like I’m going through the beginning all over again and constantly checking my eyes/looking for answers
thank you x
Scarring is normal after a CNV but my own experience is that it is usually stable or even shrinks a little; I have a Foster-Fuchs spot (a big scar) that has been there for 35 years and never shifted, I have to think to see it now as y brain edits it out.
You don’t gibpve a timelin, perhaps your brain is still learning to correct? It took a few months
Hiya, it needed an injection - fluid was there after all. Glad I persisted but now in pain after my 1st injection yesterday. How big is the foster Fuchs spot?
Our sight is very precious and, if there are problems they need to be addressed quickly. It is possible for a specialist to miss something. Possible doesn't mean likely. Given your case I would seek a second opinion from a different ophthalmologist, which is a course of action I have taken in the past and it proved to be a wise decision.
I suggest you visit your optician and ask for a referral to see an ophthalmologist. My preference was for a referral to a specialist on a private basis to ensure that I got to see who I wanted to see. You need to look for someone who is an expert on PED, i.e. vitreoretinal.
Spire and Nuffield hospitals are a good place to start if you've not gone privately before. If uninsured, expect to pay around £250 for the consultation, probably around £350-£500 for an OCT scan and hospital charges on top, which would need checking with their admin. Nuffield are particularly good at quoting an all-inclusive price for an examination/visit and offer payment plans too.
My understanding is that we have the right to seek a second opinion on the NHS, but timing and who we get to see will be out of our control, although under 'NHS Choices', we can specify a specialist (their clinic), hospital and location of our preference. Again, you would need to go through your optician for a referral.
Try not to worry; it's much wiser to take some kind of action than worry.
I hope this is helpful.
Thank you for your response. I went back and am having more scans this week, I had seen Moorfields privately. I am also insured so have a name should I not get what’s required. Thank you.
These PEDs close to central vision are terrifying. I can’t see through it at all unless in brilliant light. So that must mean there is a light filtration issue.
Did you have PED’S?
Thank you
I wish you a positive outcome from your scan Rhodes and hope all goes well for you.
Having progressive myopia since childhood, I have experienced retinal detachment, retinal holes/tears, macula oedema, which is I think akin to PED, and have just been diagnosed with geographic atrophy (dry) in one eye, which is incurable and worsening but not yet migrated to the foveal region. In short, I understand the anxiety and fear that sight impediment/likely loss (in due course) brings with it.
Fortunately, my ophthalmic surgeon is probably one of the best in Europe. He saved my sight 20 years ago and is kept up to date with the status of my eyes, courtesy of an equally brilliant optometrist.
Do post to say how you got on when you know the outcome.
Hello, I had to have an injection. At the moment it’s blurry and dry, swolllen and painful. But hopefully this will stop it in its tracks. All so worrying. Who is your ophthalmologist? I’m not happy with how things are handled where I am- I don’t even get to see the consultant!ci have private healthcare so can go elsewhere.
Hello Rhodes, I think it's good that you've received attention, but in your position I would seek a private referral to a specialist surgeon, just to be sure.
Here is a link to my optometrist, Sean Rock:
They have clinics in Cambridge and Saffron Walden.
Here are the links to information and accessibility for my ophthalmic vitreo-retinal specialist, who is based in Cambridge and is, in my opinion, brilliant. He is available through various insurers:
cambridgeeyetrust.org.uk/te...
spirehealthcare.com/consult...
Our eyes are precious. Based on my experience, it is well worth the effort to travel some distance, even for only one visit, to get a solid medical opinion from those who's opinion is worth obtaining.
I hope this is helpful and offers you viable options to think about. The very best of luck to you with both your condition and treatment.
Thank you Bridget. Are you Cambs based? I am just down the road, Bury St Edmunds. I will have a look into all of this, as you say sight is precious and this situation has made any of my prior worries seem very small x
Though I prefer not to reveal precisely where I'm based, I shall say that I know well both Bury St Edmunds and Cambridge. Do post to say how you got on with your investigations in due course!
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