In October (23) I noticed a kink in my vision, when I looked at a door frame etc there would be a really really small kink in the line and then it would go back to normal.
So I went to opticians in the UK (Specsavers) and did the OCT Scan etc. They identified a really small abnormality on the scan but said they has the scan from the year before and it was the same, and to not worry and sent me away.
Now for some reason I cant explain I stopped noticing the kink for over 7 months (maybe it was always there but I didn’t notice it) Anyways last week (June (24) I noticed it again and on the Amsler chart it was in the same position as before so I thought things were getting worse so I made yet another appointment with specsavers. They again did the OCT scan and said everything is the same and again to try not to worry. When I presses as to why im seeing this kink he said “ you must just be more susceptible” than most and that’s why im seeing it.
So I went away again and now I cant stop focussing on this Kink, its really getting me down and I am grabbing the amsler chart about 50 times a day…im exhausted with worry.
I am now taking Areds2 and have been for a week, and protecting my eyes from the sun etc.
So my question is should I go see my GP and get referred to a ophthalmologist? As its my understanding that in the very early stages you shouldn’t really expect any kinks in vision, and everything online suggests that only happens in the more advance stages?
I just don’t know what to do?
I have an eye appointment in under 6 months time with specsavers, should I just wait till then and have faith in what ive been told?
Any advice would be welcome.!
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chrisnewton35
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You should phone Specsavers to clarify if you have been diagnosed with a macular condition.
If you have dry AMD you will not usually be referred to the hospital but will be monitored by your optometrist. You should look at an amsler grid once a week to identify any sudden changes. You will find it difficult to spot a change if you look too often.
AREDS2 supplements are usually advised for those at the intermediate stages of AMD as opposed to pre-diagnosis, early AMD or late stage AMD.
Good morning Chris, if it was me I would ask for a referral to an eye clinic as it sounds as though you could have Wet Macular Degeneration. This can be treated with injections. Best wishes to you.xx
Good morning...I was specifically told I didn't have wet AMD .. he even showed me what wet looks like on a scan and that my scan looks nothing like it... but I am going to Push for a specialist
I would not want to worry you further but based on my own experience with macular degeneration (wet in one eye and dry in the other) I would definitely get an appointment with a consultant ophthalmologist. This might reassure you that there is no concern or if there is to begin treatment. Again based on my own experience, if there is an issue then the sooner the treatment starts the greater the likelihood of your sight being improved or at least stabilized.
This is what confuses me though. I was told specifically last week that I don't have wet AMD they even showed me the scans of what wet AMD looks like And then he showed me mine and they were nothing like each other.
I am talking areds2 now so if it is dry amd then there is pretty much nothing else anyone can do at this stage. Am I right in thinking that?
i know this sounds crazy but isnt it better to have wet AMD? as from everything i have read that can be treated with injections, where as there is no current treatment for dry?
I understand you. Yes at the moment there is no treatment for Dry AMD but there are trials/research going on all the time so hopefully one day there will be treatment. Hopefully one day they can improve treatment for Wet and we don’t have to have injections in the eye so often.
Hi, to the best of my knowledge there is nothing available for dry AMD but there is research on-going. It would be worth contacting the Macular Society as they are very helpful and have a number of leaflets which might also be of help. I hope everything turns out alright.
Hallo. I've had bad experiences with Specsavers over the last few years. I will not use them again.I have a BRVO for some 8 years now, they are not in my opinion very knowledgeable about this in fact at my last eye test last year the optician wanted to not test my eyes as I have regular injections and my vision will change (his words) also told me I needed blood tests with my Gp but wouldn't tell me what for when I asked why. Rang my gp only to be told they wouldn't do tests unless the optician contacted them! All very muddled and I'm not happy so I will go to a local optician in future. This wasn't a one off I had similar problems two years ago. Anyway that's just my experience.
If you were me I would ask for an ophthalmic appointment asap. Please go and see the opthamology dept in your local hospital if only for a second opinion.
Hi I have just read your post and can understand the worry, I don't know where you live, or how near you are to an Eye hospital, or a hospital that has an eye department. If it was me I would either ring or go back to Specsavers, and ask to be refered to that hospital, they would have all the experts there, anything to do with eyes should never be put off. It's like most things, if caught early is the best way. Good luck. and keep us in the know.
Thanks everyone...so I have a drs appointment on Thursday to try and get referred to a specialist... in the meantime time I've phoned Specsavers and I have appointment tomorrow with their head specialist to go through my results...
Do you have a main eye hospital in your area? If so, I would be tempted to go to the A&E department of that hospital and ask to be seen by someone as you're not happy with what's happening with your eyes.
Yesterday I seen the head optometrist at Specsavers as I had complained that I didn’t really get any answers last week. I was given another OCT Scan (week after my last one) and she went through in detail in what she saw.
On one of the scans (the one where you see the big orange ball) sorry im not an expert lol, she showed me my 2020 can, and compared it to this one and she said its almost identical, she said that because that’s the first scan I had, its impossible to tell but I might have had what was showing since birth, she said she has seen 3 year old babies with scans that are worse than what she was seeing.
She then went to the black and white scan and again went back to 2020, this time there was a very slight difference, but she said its not AMD, its just wear and tear and its really nothing to worry about.
I pushed her on this, and she said its not AMD.
So I asked why I had this kink in my vision and she agreed that looking at the results there should be nothing that’s making that happen, I was of course told to monitor it with Amsler chart and report back if anything changes.
I have DR’s appointment tomorrow so I will be pushing to see a retina specialist, but I do feel a little more relaxed as this woman did know her stuff, and she said its not AMD. I have to take some comfort from that right?
So glad you are going to an opthalmologist....you have received great advice. Immediately when I read the word 'kink' I thought of macular degeneration....my husband sees 'kinks' in posts, fences, light poles etc. and has macular degeneration in one eye.....has had for 4 years now and takes drops. He sees an opthalmologist regularly. Wet or dry, I cannot recall, but know he cannot have the injecitons.💞
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BRVO and macular edema. Has anyone's cleared up?
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Well the wait is over !
\"Virtual\" assessments for AMD
What I see where my vision is impaired
