Newly Diagnosed with Wet Amd at age 35 - Macular Society

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Newly Diagnosed with Wet Amd at age 35

Iman22fireball profile image
12 Replies

Hello,

I wanted to share my story after reading so many others. I have recently been diagnosed with wet amd in my left eye. My right eye is fine. I am 35 years old so it definitely came as a shock! I noticed a vision change on a Friday, after waking up and seeing a spot in my vision. So I did an Amsler test on myself at home and then saw the possible diagnosis it could be, so I scheduled an eye appointment for 2 weeks from then. However ,when I woke up the next morning on Saturday, the spot was persistent. So, first thing Monday morning I called my optometrist, and had them schedule me an appointment for that day. He discovered swelling at the appointment, and immediately refered me to a specialist, and they agreed to see me the same day. I was at the office for 5 hours until I finally got a diagnosis, and was the last patient of the day. The retinal specialist gave me a shot that day and then I drove home, trying to process all this new information. I've been currently put on a regiment for a shot per month, and thus far I've only received one, and have only been diagnosed just this week. I have so many questions, and have been reading through this forum. I have found so many of the answers to be very helpful. I'm just wondering if I have a good chance of keeping my good eye's vision as it is? If I'm able to keep my left wamd eye's Vision as it is, it would be completely fine because I can still see clearly, and it only makes faces and words slightly wavy. The most difficult aspect of this disease is not knowing how your body is going to respond in the future...for me the uncertainty is the hardest part. This week has been especially difficult because I had to wean my 16 month old daughter from breastfeeding earlier than I had planned to due to the new medication I have to take. She's doing well but I've never had to wean any of my children cold turkey, but my husband has helped greatly with that! So, there have been a lot of tears this week. I consider myself to be a strong person, and have dealt with some difficult medical situations in the past, so the thought of getting prolonged eye injections doesn't really scare me. I'm just holding on to hope that they work. To sum it up, I would like to know if it possible to get wet AMD in only one eye, and have it stay that way for significant amount of time? Thank you for any responses.

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Iman22fireball profile image
Iman22fireball
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12 Replies
Magsofkent profile image
Magsofkent

Hi yes it is possible to have it in one eye only I have wet in one and dry in the other. I have injections in the wet eye regularly which at the moment have stabilised the condition. Sometimes others go longer between injections if there is a significant improvement. I hope you have caught your condition early and it will stabilise very soon.

Sending you a hug xThere are new treatments on the horizon so although it's a terrible thing to have happen it's a more hopeful time than years ago x

Rosalyn-helpline profile image
Rosalyn-helplinePartner

Hello Iman22fireball,

It may be worth you contacting us direct for further discussion. The Macular Society Advice and Information Service is open 9am – 5pm Monday to Friday on 0300 3030 111.

Alternately, you can contact us via:

help@macularsociety.org

This is a link to information on our services:

macularsociety.org/support/

We do have a Working Age and Young People's Service (WAYP):

macularsociety.org/support/...

Kind regards,

Macular Society Advice and Information Service

springcross profile image
springcross

Hi Iman and welcome to the forum. I'm sorry to hear that you have been diagnosed with wet amd, you are quite young for this. As Magsofkent has said, it is possible to have dry in one eye only but the good thing about yours is that it has been caught early. Are you in the US? I ask because you said you were at the office and that you were given a shot the same day. I was seen the same day (in the UK) and it was found that I already had damage to my macula but had to wait over two weeks for my first injection. As Rosalyn has said, it may be worth you contacting them for further discussion and they are so helpful. All the best to you. xx

Hello Iman,

I have wet in my left eye only. I have had great results with injections and I take vitamins and a few supplements daily. I also changed my diet to plant based and protein shakes and worked on my emotional stresses as well.

I came back from losing about half of my eyesight in my wet eye to where I have 90% of my sight back 8-). My other eye isn't fine it is what is called dry macular degeneration, I do not get injections in that eye.

After six years of treatments (beginning with one injection a month for a long while) I am getting further inbetween injections- we are hoping we can go 6 to 8 weeks between shots in the future.

This disease is highly individualized, what may work for one may not for the other, so I will share with you what my Yoga master taught me many years ago...all things in moderation.

Or as we say in the States..poco a poco...little by little. Try something and it may work or you may have to adjust something for it to work or try another.

hang in there

Holly

kevinaki profile image
kevinaki

No one can say for sure that you won't get wetAMD in your "good" eye. Immediately after starting injections for my "bad" eye, I took steps to save my "good" eye.

( google: eye nutrition & google: eye vitamins AREDS2 ).

For the past 4 years, my "good" eye remains better than 20/20. There's a song called, "I'll Get By As Long As I Have You.". . . . . .It's true. . . .

Lizleiper profile image
Lizleiper

Helo , I know how you must be feeling !

I would like to say I have been having injections in my left eye for wet Macular for six years . I would like to tell you that my eyesight is great !

My right eye has dry macular and has been like that for six years and has not changed at all .

Although I am much older than you are , be reassured those injections really work !

So much so I am not aware of having problems with my eyesight .

Hope this helps . You will have ups and downs but keep going and have the injections and you will be very surprised how good the outcome can be !

Moshiko profile image
Moshiko

Hello, try to translate and read the following, it is in Hebrew. It is about a new treatement for wet AMD that showed experimental good results.

tasmc.org.il/Articles/Optha...

springcross profile image
springcross in reply toMoshiko

Very interesting Moshiko, thank you for providing the link.

Tetr profile image
Tetr

Hi Iman,

I was first diagnosed with AMD in the left eye but the second and third eye specialist who saw me said it was Myopia CNV. I'm 43 currently with -7 sight on both eyes. The treatment is the same, lucentis jab in the affected eye. After the second jab, the swelling went down enough so that my distorted vision is almost gone as well as the headaches. Might be good if you can seek another opinion? Another lady had Myopia cnv as the first diagnosis but was later told it was PIC which is related to autoimmune issues....

Iman22fireball profile image
Iman22fireball

Thank you so much all of you wonderful people who responded to my comment! I appreciate all the information you have been gracious to give. Well, I found out that I do not have AMD, rather I have cnv. I'm currently learning more about it. We are not sure of the cause yet, as I do have myopia, but not heavily, so not sure if it is Myopia CNV yet. Anyways, I will have a regiment of injections for 3 months, then we shall see.

springcross profile image
springcross in reply toIman22fireball

I'm glad you are starting treatment Iman and I hope it all goes really well for you. Please keep in touch to let us know how you get on and thanks for taking the time to reply. All the best. xx

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