Uh???: After my wet md review today, I was... - Macular Society

Macular Society

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Uh???

Patjo profile image
7 Replies

After my wet md review today, I was told that all possible improvement had been achieved and I would be getting no more injections. Now here is the weird part. My future reviews will be over the phone. !!! How is that possible? How can you review a physical problem verbally? Have any of you ever heard of this ?

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Patjo profile image
Patjo
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7 Replies
Tetrazzini profile image
Tetrazzini

Amazing!! Do let us know how you get on.

Best wishes

ironbrain profile image
ironbrain

Isn't one usually told it can come back at any time. As far as I understand it, with AMD, they continue with OCT checks regularly, monthly to begin with ans then at longer intervals. If you don't need regular check-ups including OCT, I think you might ask why.

MikeG1944 profile image
MikeG1944

How strange; at my last scan I was told like you that 'all possible improvement had been achieved' but instead of 8 weeks injections it would now be 10 weeks between them. I wonder if your health authority have been trying to save money. I always thought that if improvement had been made they carried on with injections to keep it that way.

tallyho profile image
tallyho

Not heard of this . Where are you based? This could be a bit will be like a triage service I expect. If they need to see you when u speak with them they will get you in and see you. They are still keeping you in there books which is good.

FireDrake profile image
FireDrake

Ask for a written explanation and take it further

Fishing1949 profile image
Fishing1949

Not heard of this approach before. Although I am currently having injection every 14 weeks in one eye, I have a consultation and OCT scan every 5 weeks. No expert but thought the only way to assess any changes or small leakage is with the OCT scan. Might be worth asking for a periodic scan so that any changes can be addresse. I hope this helps.

Patjo profile image
Patjo in reply toFishing1949

Thanks for your reply.I haven't needed an injection since early December.Had 7 in total. I am going to ask all the points everyone on the forum has raised. Seems like this is a new idea to all of us.Now I know how a guinea pig feels.

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