Lucentis injection and infection

[mydaddy]

I got an infection after Lucentis injection? I am told only 1 in 8000 injections lead to this. Anyone else experience this?

[Hidden]

Sorry to hear this. I think it is rare. I had total of 27 inj various drugs Inc lucentis and no infection.

Did they give you info on do's and don't so you knew what to avoid that might cause infection?

Hope they have sorted things out for you. Best of luck going forward.

[AMD6yr]

Hello!!!!!!!!!

YES, EYE got an infection, but I think I was being given Eylea at the time. I had been getting shots for 6 yrs using all three compounds. In July, I got an "irritation" that was sooooo awfully painful, but was told it was not an infection. I think it was caused by a poorly rinsed process. The next month, I got an INFECTION!! I think they used another type of rinse that wasn't as effective, but it could also have been a reaction to the Eylea even though I'd had it for years. The infection was equally painful like the "irritation", but I also lost total sight in that eye!!. I am just now recovering from that, after two victrectomies to clear out debris PLUS removal of the CATARACT(!) that grew because I had been given prednisolone to cure the infection!! I still don't have a lens implanted; they are waiting until my eye is completely healed. I am beginning to SLOOOWLY gain eyesight, but of course, it's blurry because of having no lens. NO ONE would/could tell me how often infections occur- your post is the first time I have had any clue as to the frequency or eventual outcome. Have you lost sight in that eye? How long ago was this? Are you in the USA? I'm in California. ANY further details would be greatly appreciated. Please stay in touch and we can compare our experiences. THANK YOU!!!

[2468G in reply to AMD6yr]

Gosh your story is unsettling. This site helps with advice and support which is brilliant but some of the experiences we have between us are quite scary.

I wish you the best of luck with your lens implant when it finally gets done. G

[Danijojo in reply to 2468G]

My experience is similar to yours, now l have lost vision in one eye, this happened after a treatment and was not given a proper explanation. several cover-ups and lack of responsibility. This was after a treatment of Eyelea. It has affected my life,

my family and work. Now disabled, just after a routine treatment. No support from anywhere.

[AMD6yr in reply to Danijojo]

I don't know how long ago your episode was, or if you are fortunate enough to be in northern CA. The Retinal Center "owns" the north half of the state, with a dozen or so offices in different cities and as many doctors, who rotate through the offices. I got my infection in Aug this year (2018) and after two victrectomies and countless office visits, am closer to getting resolution that I am HOPING will include regaining my sight. I AM beginning to see blurry images, and hoping my doc will tell me this week to schedule to have the new lens implanted. Keep me posted on your experience, and I am hoping you, too, can find a better solution than you are currently experiencing.

[mydaddy in reply to AMD6yr]

I am in Southern Kentucky. My infection came up on a Friday with blurry vision in the wet eye. I phoned my Retina Specialists practice. The on call Doctor had me come to the main office the following morning at 7:30 am. By then I could see nothing out of the eye. I was injected with nine eye injections of antibiotics and prenesalone. Was ordered back for the next am at 7:30. By 9:00am I was in surgery. They cleared as much of the infections as possible, down to the level that the Doctor could not see the instruments. I saw one of the doctors everyday for a week then less and now only once a month. My surgery was the weekend before Thanksgiving. My vision started returning within 3-4 days, a little at a time. Each time I read the eye chart it was slightly better. It has now been 2 months plus. I can read fairly well, drive and watch tv. I was told that it would take six months to clear completely. This past visit several black spots were seen on my macula. The Doctor gave me the choice to wait or to have an injection. I had the injection. My vision has improved more since then. I am glad to have my vision back. Thanks for the replies to my post.

[Hidden]

I have not had this problem but I know someone who did. She was a GP and blamed the infection on contamination from her eyelashes.

It was resolved by a vitrectomy which coincidentally, resolved her cystoid macular oedema, the reason for her injections in the first place!

[Melene]

Dear my daddy,

Based on my experience with my Dr, I would say your Dr was at fault for your infection. My eye and area is well cleansed before and after injection. Plus, I am given a disinfectant to apply a few times a day for three days.

I witnessed an employee get reprimanded for being careless.

I wish you a speedy recovery.

[mydaddy in reply to Melene]

I am told by three different Doctors that this occurs in one out of 8000 shots! My Doctors are very cautious they clense, don't uncap needles until ready to inject, clense afterward and I also have Tobramyacin for several days after. I am a retired Nurse so I am very watchful of all aspects of any proceedure.

[nancyc47201]

Yes .. A staph infection after injection.. had the injection on Friday and didnt feel well Saturday and Sunday.. Woke up Monday with severe pain in eye and blind.. Rushed to my dr and sent me to Midwest Eye Institute..Had to wait until 5:30 that evening to have surgery .. Lost a lot of vision in my eye.. I don't think I want any more injections ..

[2468G in reply to nancyc47201]

Hi. These experiences on this post are terrifying. I will be a bundle of nerves next time I need an injection. Little wonder you don't want any more injections. I hope you regain lost vision as you heal.

Best wishes. G

[Hidden in reply to 2468G]

Fortunately, the infections are not life threatening and are treatable.

I have had 89 shots and having previously gone blind in the eye would happily continue for the benefit of continued sight.

[2468G in reply to Hidden]

Hi Rennatk

Yes of course you are right. Injections have helped my CNV and I would happily have more to save my sight. I just become a little unnerved by some of these experiences. G

[AMD6yr in reply to nancyc47201]

I urge you to continue the injections. The alternative IS loss of vision by AMD. If care is taken, you don't get infections; I didn't for 6 years, but had changed doc and office location, because the Medical Group had opened an office closer to my home! Will continue shots with my previous doc at the original location, once this clears and I DO think it will. I am beginning to see "stuff" now - images that are blurry 'cause I don't have a new lens yet. Keep checking my posts to "mydaddy" to follow my progress.

[AMD6yr in reply to nancyc47201]

Please keep me posted on your progress and recovery. I THINK mine will be resolved here in the next couple of months, but it HAS been a long and painful experience. I want/need to learn what happens to others. THANKS

[AMD6yr]

How's it coming? Any changes? It's been 4 months for me, but I AM beginning to see images, blurry ones, but I don't have a new lens yet. Still taking eye drops and will see my doc this week. Hope he says "make an appt with the ophthalmologist for a new lens now." HOPING!!

[Maryvic]

Do you know if your injection was preceded with betadine or chlorohydrine (sp?). My doc only uses betadine. I inquired about the other and he said that betadine has a better track record for avoiding infection. You might want to check that...

[Dee121357]

When I first received injections and an infection in my left eye (thank you Retina Associates in Kansas City ) my online research said 3 in 90362 received an infection. That had to be a lie because I've met around 5 people with the same problem and I don't know 100,000 people. I've started with a new group of retina specialists and I found out last week I have 20/725 in that left eye. I am going in for eye surgery in a couple of weeks to get a new lens and the scars removed from that eye. Good luck to you.