Macular edema: Hi I have had macular edema... - Macular Society

Macular Society

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Macular edema

thom3patty profile image
5 Replies

Hi I have had macular edema for several years I am a diet controlled diabetic (have been for about 10 years) but continue to still have problems with my eyes I have had avastin injections that didn’t always work and kenalog that work great but recently started raising my eye pressure due to the fact that I had iluvien implants put in 1 1/2 years ago that never worked but they r a steroid so along with them a kenalog injection is too much steroids for my eyes so once iluvien wears off (about another year) I have to find an injection that will reduce swelling my eye dr gave me eyelea 3 weeks ago in left eye and 1/15/17 in my right eye never hd such a painful reaction like these injections any support or tips would be greatly appreciated thank you

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thom3patty
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5 Replies

Hi, I use Timolol drops for raised IOP ( with inj and later ozurdex implant). They work very well for me.

Pain after inj can be due to dry eye ( my clinic use soothing drops and I have some for home use), or need more rinsing out of iodine after inj, or a real sensitivity to iodine (change iodine to chlorhexidine).

Best of luck.

thom3patty profile image
thom3patty in reply to

Thank you

Macular_1 profile image
Macular_1

Hello thom3patty,

The following is a link to our factsheet about macular oedema and our booklet about diabetic macular oedema;

macularsociety.org/sites/de...

macularsociety.org/sites/de...

Some people do get pain after their injections, although this is relatively rare. The following is another link to our factsheet on the subject;

macularsociety.org/sites/de...

I am afraid that raised eye pressure and an alternative treatment is something that you will have to discuss with your ophthalmologist. The following link is to our booklet on treatments;

macularsociety.org/sites/de...

Best wishes

Macular Society

thom3patty profile image
thom3patty in reply to Macular_1

Thank you for the links also just to let u know when I had previous shots avistan and kenalog they were nowhere near the pain of eyelea I don’t know if it is different medication that is painful but the eyelea is working so it will b what it will b

123charl profile image
123charl

Good morning. I have searched the site for someone who has had the 3 year steroid implant and your post was the only one I could find. I have been reliant on insulin for 35 years. I have had much laser, eye injections and 4 monthly steroid implants. My consultant is putting a 3 year implant in my eye on Thursday. Could you please tell me your experience after the 3 year implant and how you remedied taking alternative treatment as the implant didn't respond to your condition. There is very little information on the success of this implant and I value your experience. Many thanks

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