reaction to Eyela: Has anyone else had this... - Macular Society

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reaction to Eyela

ColWi profile image
15 Replies

Has anyone else had this happen? I have been having Eyela injections for about five years now. I had a different medication before that. I now have a longer-lasting Eyela injection. About four months ago. My eye pressure shot up after the injections. One eye went black for about 20 min. The other eye was crazy if it looked like an arcade. I was blaring white light with neon blue light darting around. At the same time, it felt like someone was jabbing a knife into my temple. All of this lasted about 20 min. My Retinologist now taps my eyes before the Eyela injection. It has helped to do that as I don't have that symptom. However, after about three injections back in my good eye, I have hazy spots that make it hard to judge values to paint and focus. The Dr. checked it out and said he could not see anything. So if he can't see anything different, he cannot fix whatever happens. I have light cataracts, so I will have the one in my good eye taken out to see if it sharpens things at all. I do not have MD; I have a genetic disease called PXE, and I have Angioid Streaks. I get the same injection, though, as people with MD.

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ColWi
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15 Replies
JGer123 profile image
JGer123

Hi - That sounds like a scary reaction to the injection, sorry to hear that happened to you. I have had Eyelea injections, but never with a reaction like that. Sorry I cannot be more help, and hopefully you don't have that reaction again.

ColWi profile image
ColWi in reply toJGer123

The doctor said he has seen a reaction but never this severe. Now he is tapping my eyes it is not happening. But the pain was so bad I thought to myself I might take my chances going blind. 😳. So you can imagine how bad it was.

springcross profile image
springcross

Hi ColWi. What a scary experience! I never had a problem like that when I was having Eylea injections. I hope you never experience that again.

ColWi profile image
ColWi in reply tospringcross

When it started, I told him, but he did not realize how badly I was saying it until I said I was thinking about stopping. I suffered like that for about six injections. Now, since the tapping, it is not like that. However, he did say about the tapping. I would not just let anyone do this. They can hit your cornea or something, and you can lose more sight.

springcross profile image
springcross in reply toColWi

I hope you don't get any more problems in the future. 🙏

ColWi profile image
ColWi in reply tospringcross

When people say the odds are low about anything, I laugh because I tell them I seem to stand in that line a lot.

springcross profile image
springcross in reply toColWi

I know what you mean!!

ColWi profile image
ColWi in reply tospringcross

😂

fed13 profile image
fed13

I had a cataract op., and it improved my sight hugely. Your reaction to the new longer lasting Eyela sounds horrid! Poor you! See what the Macular Society suggest! Let us know how you get on. (I'm on the longer lasting Eyelea, but fortunately I've had no problems!!)xx

ColWi profile image
ColWi in reply tofed13

The Retinologist said I had the worst reaction he had ever seen. He does thousands of injections. I know that Eyela thinks it can affect your eye pressure, but leave it to me to take it to the extreme. The tapping has fixed it, but now I get four injections instead of two. That is not fun.

Shimano profile image
Shimano

I am due to switch to the increased eylea dose after approx 5 years on the normal dose. My doc doesn’t think I need to do the normal loading routine for switching over as I have been on the lower eylea dose for so long. Had a bit of a wobble reading your experience ColWi so hope I’m the same as fed13 and have no problems. Would also be interested in response from macular soc as to any feedback they have on the increased eylea dosage. Hope future injections go well for you. It must have been very scary.

ColWi profile image
ColWi

Here is what Eylea says about eye pressure as a side effect. My experience was infrequent and extreme. He had never seen it that insufficient and increased Eye Pressure. Now he is tapping my eyes before I no longer have that reaction. But it wasn't good. I would talk to your doctor about it, but I don't think you will react that way. I still get the longer-acting Eylea injections every 8 weeks.

Increased eye pressure is a common side effect of Eylea injections. This increase in pressure may cause discomfort or other symptoms and require your healthcare provider’s monitoring and management.

Should you observe a continual rise in eye pressure post-Eylea injections, you must notify your doctor, who will evaluate your symptoms and determine the right course of action. Swiftly addressing the increase in eye pressure can aid in averting potential complications and uphold the ongoing effectiveness of your treatment.

Catseyes235 profile image
Catseyes235

sorry but what exactly does ‘tapping’ mean?

Shimano profile image
Shimano

That is really useful feedback. Am I correct in assuming the quadrupled dose of eylea might increase the risk of high pressure in the eye.

thom3patty profile image
thom3patty

I would get a second opinion

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