LUPUS UK | HealthUnlocked

hi all I just wanted to make you smile on a very windy 🌬️ gloomy Monday in Somerset . Even Prince Tiggy I think is suffering from lack of sunshine 🌞....

Finlay loves a muddy puddle 🫣😫 I hope you all have a good week ahead. Life seems to be difficult for so many of us right now. Thank God for our beautiful...

Hi everyone - wondering if this is something others here experience - or whether it's just me? I frequently have a weird internal buzzy feeling to the point...

What would you most like to tell rheumatologists? LUPUS UK are presenting at a conference for rheumatologists, and we want to make sure we include your...

Hi everyone, I’m a total newb to this. I have just been diagnosed with SLE and am in a bit of a whirl. It came as a shock. I hadn’t even heard of it before I...

Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice....

Hi folks , it’s Mira,s 4th Birthday tomorrow, for anyone who is not familiar with Mira, she was born right at the beginning of Covid and certainly kept us...

This is Hugo chillin out while he waits to go out in the wind and rain this morning. Pulling on waterproofs and wellies and playing ball is last thing I feel...

I feel lonely, sad ,weak and useless.I feel like to give up

anyone taking this as a supplement and any advice as mixed reviews online . Thanks

As the title says. I'm struggling right now and just wanna cry, but can't because I'm on holiday and it's my birthday and I should be having a wonderful time....

hi Im looking for advice. I had a relapse after a few years and had a consultation with a new consultant as all my old ones had retired. I was pretty much...

Hello everyoneJust thought I'd pop in to show you this special cutie foal born at Whipsnade Zoo. He's a breed that is classed as extinct in the wild and...

Hi.Can anyone recommend any cream or advice on how to calm facial erythema please ? It happens totally randomly, people assume it's a hot flush. I'd love to...

Dear Lupies, I hope you are feeling well. 🙏 I wanted to share my recent experience with you all. Despite years of discussing my menstrual difficulties,...

hi folks it’s been a long while since I’ve last posted- I have been in and out of hospital 3 times in last 3 months with the most excruciating pain in my tummy...

Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in...

Hello EveryoneJust thought I'd post these lovely lambs in their woolly's . Much needed aren't they as its gone so chilly?. I thought they looked really cute...

Morning all. I have recently been diagnosed with secondary sjogrens and wondering if anyone has any tips for helping the dry eyes. I have always struggled with...

This blood test was requested February 2023 from a London Hospital. GPS phoned just now and said they don't do this ?

Hi lovely Lupies, an update on my post despairing of getting any support. Today the Rheumatology Nurse called me and was incredulous when I told her about my...

hi folks just wanted to post a pic of my first ever walking stick - who would have thought at the age of 56 I would be needing one. Im so pleased with the...

I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems...

Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for...

Good morning im asking if these symptoms are familiar with anyone or if it’s nothing to do with UCTD/Lupus. I’ve been getting them on and off for a while...

Does anyone know about this.? Another surprise for me. I’ve been feeling well, getting out and about, decided to have a rest day today. This afternoon I...

just been diagnosed with lupus . I’m 55 and would like advice on how to control symptoms and what foods or supplements help

Hi 😊 Not sure if this is the right bit. For last 3 years I have extreme tiredness, rash on cheeks a lot of ulcers in mouth. Unsure if lupus was sent to...

Hi all - I’ve just been diagnosed with UCTD (after many years of symptoms!☹️ ) and have been prescribed Hydroxychloroquine. Consultant gave me a leaflet where...

Not All Sunshine–The Reality of Vitamin D Supplementation:...