Cardiology: I am starting my New Year with an... - LUPUS UK

LUPUS UK

31,721 members28,084 posts

Cardiology

Binkey profile image
5 Replies

I am starting my New Year with an appointment(9/1/12)with cardiology.I have never had a problem with my heart before so,am jubious as to wether or not it is related to the Hydroxycloroquine.I am certain the phycological problem has something to do with the Hydroxy.I have an appointment with the reumatologist in February and will keep taking the Hydroxy until I speak with them.My GP looked it up(in her little book)and it seem's there is a possibility that the Hydroxy could have this side effect.Has anyone else had this problem?Anyway,HAPPY NEW YEAR everyone(I really do mean it).Stay well.

Written by
Binkey profile image
Binkey
To view profiles and participate in discussions please or .
5 Replies
Thaddeus profile image
Thaddeus

Hello Binkey

Hydroxy is well known for it most common side effect of causing upset digestive problems which can go on for weeks and catch you unaware!!

But the stuff comes with a long list of possible problems. The dosages which we take do not tend to cause the eye and skin colouration problems which some people will warn you about. That said everyone should have an eye test at the start of taking it, and be aware of possible changes in your colour perception.

Toya profile image
Toya in reply to Thaddeus

thats very true

Binkey profile image
Binkey

I have an eye test coming up on12/1/12 after cardilogy on 9/1/12.The eye test is because I had an eye test before taking the hydroxychloroquine and coincidentally,my optician decided to refer me to opthalmology because he thought there was a very minor defect in my left eye,hence the regular eye test's.The phycological side I am certain myself,is related.I have never felt like this mentally before.The most peculiar thing is,I am having more problem's with my right eye.Hopefully,opthalmolgy will resolve the problem.The next step is to deal with cardiology and hopefully,it is something minor.Thank you once again for your kind help.

Toya profile image
Toya in reply to Binkey

I had eye test and seems not right at all and scary thought even i drive so please make sure its right medication!

Magda profile image
Magda

Binkey,

I have had lens replacements in both my eyes after having been treated with chloroquine for 10 years. I don't want to give you bad karma, but a realistic approach to your appointment would be to expect some procedures,to your eyes. Prolonged usage of quinine causes cataracts to form over the eyes and the sooner it gets treated or removed the better- in my case I was almost blind and they had to replace my lenses. At least my eyes are beautifully bright since then because the prosthetic lenses have a definite "glint". So, even if that has to be done, something positive out of it: eyes shining like stars!!! :-)

You may also like...

Discontinued hydroxy

anyone know if hydroxy has to be permanently discontinued after5 years. Is this a new protocol?

Outcome of Expedited Appointment

so son had to get back to wotk before I was seen. I was asked why I had made the appointment....

It never rains it pours

Happy new year to you all. It's been a wonderful start for me I must say and I'm feeling very sorry...

Oral Thrush that does not go away

everyone. I’m having a problem I need advice. Oral Thrush has been treated in the last 8 years off...

hydroxychloroquine and nerves

Hi as anyone had nerve related things going on, after having hydroxy. I had nerve twinges before,...