My 18yr old has been ill for 2 years. Initially it was stress, related to bereavement then the usual fobbing off with virus/tonsilitis/ME. She tested positive for Glandular Fever last year but still isn't well. She has Reynauds, headache, light sensitivity, sore throat, joint pains, fatigue,lethargy... GP has been treating her for depression since January as she was suicidal. The depression is responding to treatment but the physical symptoms are persisting. As I have Lupus I requested a Rheumy referal. He took an arm full of bloods (results not back yet) arranged circulatory tests on her extremities and decided her joints were hypermobile. He actually dislocated her wrist in clinic! She has had to leave college (she was doing A levels) and actually got a job but couldn't manage due to illness. What can she claim as JSA is actually for job-seekers. All she does at the moment is lie on the settee in the dark and is very emotionally dependant on me. I can appreciate how she feels as I have Lupus but some family members keep saying she should pull herself together! Are there any teenagers who can empathise with her, or parents who can advise. I really am at the end of my expertise.
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