I have dicoid lupus, I use f50 suncream, in UK and still get raised marks on my skin. Go to Tennerife my skin is great with f50?? Why???

[Berny]

[allys2011]

Hi. I too have to have sun protection. I found I still burned with SPF 50, so I looked for something better. I went into a Spanish chemist and the lady gave me a spf90 and it's brilliant. The sun just can't get through it at all. It's made by helliocare and it's spf90. I buy it online in uk as I haven't found any store here that sells it. Hope this helps.

Ally x c

[Hidden]

Hi . i also have DLE,, iasked this question to myself also!It was not abroad though,it was when i went on Holiday to St Ives in cornwall!I sat on the beach thinking,,oh yes im going to pay for this,,but after two hours the sun had not bothered me as it would when im at home .I also use factor 50 and a antihistamine from my dox called Fexafenadine Hydrochloride 180mg,, i think this helps tremendously through the sunnier months(when we do get them here ha ha ) i wondered if it may have helped i was relaxed as on holiday and under no stress at all that week !Hope this may have helped you.x

[mog_105]

Hi, I'm new to this as I was only diagnosed on wednesday So does this mean I may be able to sunbathe (maybe for a little while?)

I have the butterfly rash on my face and I am 27 years old and have never had any problems in the sun? I don't normally burn and I have already bought some factor 50. I am keeping covered up until my rash has gone from my face. But is it possible it may not flare again for a few years?

Sorry for all the questions, but I'm looking forward to my summer holiday abroad?

Thanks

Claire

[Paul_Howard Partner LUPUS UK in reply to mog_105]

Hi Clare,

Not everybody with lupus is sensitive to the sun. Roughly 60% of lupus patients have light sensitivity. You may be one of the luckier ones that don't have to worry so much. You can only really work it out for yourself, take care.

It is advised to avoid direct contact with the sun in case it does cause a flare. High factor sun cream and covering with clothing are the best ways to do this.

[mog_105 in reply to Paul_Howard]

Hi, Thanks for the reply. I'm still pretty new to this and trying to work everything out, as usual i didn't ask the doctor any questions at the time.

[mog_105]

I forgot to say that it is discoid lupus too.

x