How often do you see your lupus speacllist? - LUPUS UK

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How often do you see your lupus speacllist?

luppychick profile image
10 Replies

I see mine every 3mths when do you think it might be every 6mths

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luppychick
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10 Replies

hello luppychick

up to now i have been seeing mine every three months but on my last visit he has changed it so he now only wants to see me every six months.

that change for me was after 2 years at every three months,i guess if you are having no problems and bloods are consitant then he might leave each appointment longer.

everyone is different you might always stay at 3months.

luppychick profile image
luppychick in reply to

Thanks Pinky I look forward to when am down to 6 mths, my life is a series of hospital appointments. Thanks for your reply :)

marypw profile image
marypw

I have been diagnosed 2.5 years and see mine every 6 months; my antibodies etc are all fairly stable. I also see a renal consultant every 6 months and a cardiologist annually. When they see how you respond to treatment and what works and you are stable, they will probably put you down to 6 months.

Good luck xx

luppychick profile image
luppychick in reply tomarypw

Thanks Mary

Tigerlily4 profile image
Tigerlily4

Once every 6 months appears to be the new NHS "normal".

luppychick profile image
luppychick

Thanks tigerlilly

Danielle2419 profile image
Danielle2419

when i was dianosed last year it was 3 months nowits risen to 6 months i think it all depends on pain and how responsive you are to treatment.

luppychick profile image
luppychick in reply toDanielle2419

I can't wait till its six months, my life is dominated by hospital appoiments and waiting rooms thank you for your reply metoyou.:)

MandaM profile image
MandaM

I was diagnosed by a renal consulatant back in 2000. I've NEVER seen a Lupus specialist!

luppychick profile image
luppychick

St Thomas hospital has a lupus speacllist mandam.

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