Rheumatologist ???

Rheumatologist ???

Hello everyone, I am new to this site, I was misdiagnosed 15 yrs ago, was told I had PLE and was unsuccessfully being treated for this. My dermatologist then decided 3 yrs ago that it was indeed LUPUS (DLE) I was then sent to a rhummy and he told me I had fibromyalgia, given painkillers and that was that!! I have had some really bad flares recently and my GP sent me back to my dermatologist where I was told that my LUPUS was progressing affecting my general health, so I now have DLE, SLE and SCLE along with the numerous other conditions that come with this god forsaken disease. S to get to the point....eventually...should I be seeing a rhummy? I only had the one appointment 3 yrs ago, surely I shud be speaking to someone with a vague knowledge of the disease!! Thanks in advance for any comments xx

4 Replies

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  • I haven't been diagnosed yet so can't say a lot but yes in my opinion you should be definitely seeing a rhuemy x

  • I was seeing a rheumatologist for years for SLE, and then when i developed SCLE, i was referred to a dermatologist. The dermatologist only seems interested in my skin. SCLE hasn't bothered me for a few years, whereas my joint pain is always present and is the main problem for me.

    I think you should be seeing a rheumatologist and i believe you can ask to be referred to one. Good luck.

  • Yes, you should see a Rheumatologist. Mild DLE may also be dealt with through the Rheumatologist, more complex may be referred to a Dermatologist. There's no reason you can't see different departments simultaneously. (Well not at the same tim but on different days/times depending on clinic days). x

  • Thanks every one, I will def see my GP this week for a referral, life is difficult ATM with a dozen diff aches, pains, lumps and bumps, pills for this and that and family thinking I look the picture of health, not realising the complexity, confusing and in curable disease that is LUPUS. I am by great full for this wee community blog and hope to help others if I can.

    Here's to a better day xx

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