Hello everyone, I am new to this site, I was misdiagnosed 15 yrs ago, was told I had PLE and was unsuccessfully being treated for this. My dermatologist then decided 3 yrs ago that it was indeed LUPUS (DLE) I was then sent to a rhummy and he told me I had fibromyalgia, given painkillers and that was that!! I have had some really bad flares recently and my GP sent me back to my dermatologist where I was told that my LUPUS was progressing affecting my general health, so I now have DLE, SLE and SCLE along with the numerous other conditions that come with this god forsaken disease. S to get to the point....eventually...should I be seeing a rhummy? I only had the one appointment 3 yrs ago, surely I shud be speaking to someone with a vague knowledge of the disease!! Thanks in advance for any comments xx
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