Hello, I'm just returning to "life" after a month of Shingles, this time on my face, scalp, inside mouth, on stomach (and if the pain was anything to go by, it was in tummy also!!.) I had an endoscopy in Nov. whilst having a Shingles attack on my face, and I believe it was this that drew the virus inside my body!!
I have had Shingles for 14 months, and apart from countless courses of Aciclovir, which only seems to make me feel sicker, I have been given no other support, and the attacks are worsening in pain and coverage.
Not suprisingly, I became very depressed over Christmas and New Year, and having already dropped much of my medicine due to constant vomiting, I decided to carry on the detox and have ceased taking Hydroxycloroquine, in the hope that it is this, which is causing the intractable Shingles attacks. NB. My GP calls Hydroxy' an Immune-Suppressant, wereas my Lupus consultant calls it an Immune Regulator .......... it's the only thing I can think of to try and HELP MYSELF.
Does anyone else have experience of intractable shingles, and actions taken to tackle it?