Has anyone here had a diagnosis of "Lupus miliaris disseminatus faciei" ?

[Ani-]

[Hidden]

I have just had to look this up. Seems it is rare - and it may not be autoimmune (I didn't see this, at any rate). The good news from the one website I looked at is that it apparently resolves in 3-4 years. Bad news is that it can leave scarring.

The site I looked at suggests that it is predominantly a male affliction. There were several possible alternative diagnoses.

emedicine.medscape.com/arti...

Hope this helps!

[HermioneG]

I know of this as one of two skin diseases which have nothing to do with lupus, the other being Lupus vulgaris which is a skin form of tuberculosis. The cause of LMDF seems to be unknown - a possible relation to TB seems to be discounted because no signs of TB are found.

Lupus was given the name when only the skin disease was known, before systemic disease associations had been described and could be tested for. Several separate diseases were thus called " lupus -"

Lupus erythematosis skin symptoms aren't mentioned as differential diagnoses for LMDF.

Hermione

[Ani-]

Thanks! I had read various reports and medical documents about LMDF, just wondered if anyone else here had a diagnosis and how it was treated. It may have nothing to do with lupus (SLE), but since I already have a lupus diagnosis I imagine it could be linked! I'm due for all kinds of further tests in October so I guess I will know more then.

Kind regards

Ani

[Lmdf in reply to Ani-]

Hi Ani. I was diagnosed with LMDF a couple months back. What helped? Let me know. Hope you are better.