Well, after suffering a flare for over 6 weeks my doctor finally agreed to let me have yet another course of steroids.
This inturn effected my INR reading and sent it to 4.7 which was obviously too high, so felt awful again. Reduced meds one night then got upset tummy so INR dropped to 1.4 in 3 days - then felt really awful.
managed to get my inr back to 3.8. then off I go to see the max fax man re my terrible teeth to get told might not just be the sjogrens as i have a ferriten level of only 8 and so am anaemic. So I am now on a double strength course of iron tablets for the next 2 months - dodgy tummy here we come again.
When will it ever end? (whinge whinge lol)