Hi everyone, it’s been a hot minute since I posted! I’ve been generally well, apart from being injured during a recent routine gastroscopy. (Do you get frequently injured or experience complications during routine procedures? It seems to happen to me more and more often these days.)
Anyway, I’m about to relocate, and wondered if anyone has any tips for minimising stress and flare ups? The last time I moved, I ended up collapsing halfway through the day, nauseous and unable to move. This upcoming move is a far bigger one, and while the company is helping me pack and doing all the logistics, there is still bound to be some stress. What has helped you during a move or equally stressful period? Any tips welcome!
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MusicalFurbaby
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I moved a few months ago and got some emergency 7 day course of prednisone. My joints went into spasm after day 2 and I couldn't hardly move. The steroids were brilliant i could move freely then next day. Moving stress being what it is I ceased up again but rang the gp and got another 7 days which did the job again and after that I was OK. If anything causes a flare, moving house does so see if you can get an emergency 7 day supply before you move so you have it on hand should you need it. Hope the move goes OK. I said 'NEVER AGAIN!'
I had bad reaction to Gadolinum used in an MRI, also reacted badly to Lidocaine (and eyes did not fare well when I had lots and lots of eye scanning tests in one six month period, three years later still no sensible diagnosis).
I think we can react differently and that the exception criteria used are not always sufficient to flag up potential issues. For the majority of patients the stats show things are okay, so when something happens they say 'oh it is rare' and show so little interest*.
Also, so much is now being outsourced and standards could vary and monitoring not be sufficient.
Rewarded for high stats and no accountability when things go wrong. *From experience of the bad reaction to 'Gad' I feel things are pushed under carpet (PALS forwarded feedback to Compliants whose 'senior nurse response' was so hard to read. Given the amount of detail and feedback I had provided time after time to them, things in her letter were dreadfully inaccurate and not relevant, and I was not able to reply as it got automatically closed).
When had things going wrong, GP would not get involved - just changed the subject to something else when I was demonstrating / reporting how I was affected. It is a joke. He did say it would be a waste time feeding back though, and he was right.
Guess also success rates are nothing like we see on TV where generally everything is successful and most survive, eg in 24 hours in A&E.
Infection rates in hospital are also high. My mum caught covid in A&E last year and ended up a ward where there was Noravirus.
Mum had moved to be near another relative. On getting out of hospital, she said she wanted to move back here, to die at home. Unfortunately she died soon after. I'm so angry about the lack of care and the negligence that exists. There are far to many 'catalogues of failure'. Simple conditions being missed initally, and then the situation getting far worse.
There are also so many inequalities of care. Some being able to afford so much and others just being given painkillers, when much better treatments are available but nobody wants to take responsibility.
I'm actually hearing of many people's health going downhill after hospital A&E visits, surgery and after other interventions.
It is a stressful business engaging with the NHS (gps and referrals, where specialists not there to answer questions just remotely review scans etc ) and for us that impacts too.
Having said that a recent trip on 2WW breast clinic referral I was very impressed by.
Can only hope other areas been to, pick up also 🤞🙏
I’ll be moving this year, so I wish you the best and am keeping my eye on the answers here. We’ve had to put on hold the plans to go on the market this month thanks to various health issues at the moment. Still aiming though!
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Move to English countryside
How odd !
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Keep off weight gain when steroids increase tips?
