The Rare Disease Quality Statements Project wants to hear from you about what good care means to you

[Debbie_kinsey]

What does good care & treatment for rare diseases mean to you?

If you are a patient, carer, healthcare professionals, policymaker, or represent a patient organisation, the Rare Disease Quality Statement Project want to hear from you. They need your input to develop a set of quality statements for rare disease.

Complete the survey on their website: rarediseaseqs.org/

Or read our FAQs for more information on why this is important: lupusuk.org.uk/2024/11/14/q...

[Cwmtaf]

Thankyou Debbie. I have just completed this important survey.