Dr John Campbell - Vitamin D: ”Why aren’t we... - LUPUS UK

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Dr John Campbell - Vitamin D

Polaris profile image
26 Replies

”Why aren’t we shouting it from the rooftops” ?

Now conclusive

This is for everything

youtu.be/x5sc7G4s4CY?si=lVL...

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Polaris profile image
Polaris
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26 Replies
JGBH profile image
JGBH

Thank you Polaris. Great video. Which I saw a while back. Of course we know why this information is not made known, in this country ant most English speaking countries…. Vitamin D3 is cheap and effective (not just for Covid) and therefore would not bring any financial benefits to Big Pharmas… and GPs do not get fat bonuses and other freebies for prescribing Vit D! That is, I believe, the simple answer…., YES people need to become more involved in their health and treatments and must push for the correct outcome.

Betty909090 profile image
Betty909090

Yes! Thanks.👏👍👆

👏👏👏👍❤️

Important for good bone health, as an antioxidant and anti inflammatory etc.

Important for vegans, pescatarians, vegetarians and carnivores to know the difference between Vitamin D2 and Vitamin D3 in one’s diet:

healthline.com/nutrition/vi...

Also important to realise the importance of UV light in sunlight, generating Vitamin D3 in our skin. Most people in the winter months in the northern hemisphere do NOT generate enough hence Vit D supplements are necessary!👆

KnitSewPurl profile image
KnitSewPurl

My husband first started taking it when his energy levels droped and felt very ill. Always wanted to was sleep. Thought there was something wrong with his heart but everything came back normal . So he started looking up on the internet and did his own research and started taking high dose Vit D . There are 3 levels of it normal, medium level, and very high dose. He took the medium level to give his body a real boost. It did helped him so much within a week he found himself doing so much more.

I then started on very high dose of Vit D . I could not believe the change . My energy levels and my movements were so much faster . Less tired but still have to space out my work because if i don't I can cause a flare very easily. Which I did 2 weeks ago but my flare only lasted about 1½days which I found amazing. It has never happened before.

So definitely huge benefits for lupus patients.

JGBH profile image
JGBH in reply to KnitSewPurl

VitD3 is important for everyone living in the Northern hemisphere especially in winter. Important for people who have autoimmune diseases and osteopenia and osteoporosis. Good to hear your good results.

Lupiknits profile image
Lupiknits in reply to JGBH

I agree with you about its importance, particularly in the Northern Hemisphere. I have seen scientific research some time ago that linked, in that case, to its effect on psoriatic arthritis, where addressing a lack of VitD caused much improvement.

Please don’t all shout at me but to be fair, the NHS has a long running campaign to make us aware of the importance of VitD for all. They had found that awareness of sun damage means children, in particular, are missing out on its benefits. Muslim ladies who prefer to be well covered outside the house are also at risk.

When I first attended a rheumatology my VitD levels were tested and low enough for them to tell my GP to sort it out. I seem to remember it required taking a shedload of “chalk” in the period of a few hours. Since then I buy my own D3. I prefer the kind you squirt inside your mouth. It costs me about £5 a month. I take a multivitamin every day, mostly because I can’t eat much.

JGBH profile image
JGBH in reply to Lupiknits

The NHS doesn’t recommend the best and most effective VitD… neither does it recommend the correct dose and totally ignores the importance of cofactors… so again doing half a job! They need to reform their recommendations, but I doubt anything will change. So people need to inform themselves ,

Lupiknits profile image
Lupiknits in reply to JGBH

Fair enough! It seems they have to do far more. Let’s hope they learn. Thank you for correcting my wrong impression. The right information is vital.

JGBH profile image
JGBH in reply to Lupiknits

They always say they’ll learn from their mistakes… but never do! A good shake up is required.

KnitSewPurl profile image
KnitSewPurl in reply to JGBH

Yes I am Osteopenia . On Calcium with Added vit D still not enough to boost the intake of my levels until I took higher dose of it only then I noticed the difference.

KnitSewPurl profile image
KnitSewPurl in reply to KnitSewPurl

**Hv osteopenea

JGBH profile image
JGBH

Totally agree. Anyway the VitD prescribed by GPs is Vit2 not Vit3…:needing conversion so not that good..mand as you say, too low a dose. They haven’t got a clue and don’t really care. They don’t get fat bonuses or freebies from Big Pharmas for prescribing VitD!

Jillymo profile image
Jillymo in reply to JGBH

I am prescribed Vit D3 in the form of calcitriol for my condition of Hypoparathyroidism. I agree with the Big Pharma quotes.

JGBH profile image
JGBH in reply to Jillymo

from your GP? That rather unusual… Hope it helps you.

Jillymo profile image
Jillymo in reply to JGBH

It is not unusual it is a widely prescribed medication for my condition.

If it wasn't prescribed me I would be in a wheelchair or of had a serious heart attack by now.

JGBH profile image
JGBH in reply to Jillymo

VitD3 should always be prescribed especially for people who have autoimmune diseases, not just for people with specific conditions (although a priority in hyperparathyrojdjsm ).

Jillymo profile image
Jillymo in reply to JGBH

It's prescribed for Hypo -it's not prescribed for Hyper. With out it I am unable to absorb calcium which would cause Hypocalcemia which can a does cause Rickets - ( Soft weak deformed bones )

Vitamin D3 can be purchased over the counter quite cheaply.

To much D3 can lead to toxicity which in turn can lead to other complications such as - Very high levels of vitamin D in your blood (greater than 375 nmol/L or 150 ng/mL) can cause nausea, vomiting, muscle weakness, confusion, pain, loss of appetite, dehydration, excessive urination and thirst, and kidney stones.

JGBH profile image
JGBH in reply to Jillymo

Yes for hypo … typo error, and thank for correction,

Nevertheless , VitD3 should be prescribed for everyone who has an autoimmune disease. Of course one needs to be aware and responsible in ensuring one’s levels of VitD are not already too high. So testing before and after 3 months is a sensible idea.

Unfortunately OTC VitD isn’t the best. I have absorption and swallowing problems so can’t use hard tablets and buy the more expensive form, enclosed in an oil based capsule. There are many people who have similar problems.

It is also most important to take cofactors when taking VitD… that is VitK2 - MK7. Unless one is talking the older type of anticoagulant Warfarin,,, This helps with a better absorption of calcium from the body and ensures the calcium is diverted to bones and teeth where it is required and away from the arteries. Another cofactor is Magnesium… there are several brands and one needs to research this, and find the best for each individual. Not always easy…

Jillymo profile image
Jillymo in reply to JGBH

I have been on calcitriol for 'many years' and also find the soft capsules easier to take and absorb. I take both K2 and magnesium and aware of the pros and cons of having to take long term. I was diagnosed with Hypopara in 1976.

I am on antiplatelet therapy for my antiphospholipid syndrome so K2 is no threat. I was unable to tolerate both warfarin and heparin.

There are liquid capsules available on the market it's just a case of searching. For the NHS to test autoimmune patients every 3 months would put added strain on an already struggling system. I get checked every 6months if lucky and then have to nag my endocrine to check both my vitd 3 and calcium.

Spotty-ewe profile image
Spotty-ewe

This video is so interesting and informative. I started 1000 units per day of Vit D when I started Methotrexate a coupe of months ago. It seems now it is so beneficial in so many other ways. It might explain why I didn’t take a recent cold as badly as my husband despite the fact it is me that is immunosuppressed. Thanks so much for this Polaris.

Jillymo profile image
Jillymo

I am not able to store VitD due to diagnosed Hypoparathyroidism. I am prescibed calcitriol which is a vitD to help me absorb calcium. During the panademic it was announced calcitriol was in short supply which was of concern to somebody such as myself.

You might find the link below of interest which has been posted before ......

theguardian.com/lifeandstyl...

Polaris profile image
Polaris in reply to Jillymo

Thank you for this link Jillymo. I hadn’t seen it before. If I remember correctly, there were at least two MPs with science backgrounds plus a list of 200 professors, scientists, medical researchers, etc. who signed a statement recommending vitamin D - actually a hormone.

Polaris profile image
Polaris

Just to say I’ve just been told my posts re. the above have been taken down and I’m to be restricted from the PA and Thyroid forum for asking why when it was in fact ‘Technoid’, on PA forum who sabotaged the post……..

Oh well, in for a penny: I may as well post this one too !

vitamind4all.org/letter.pdf

Partner20 profile image
Partner20

There are, in fact, many of us who supplement, for whatever reason, with D3 throughout the year. I am one of those, on an otc dosage of 5,000-10,000 iu daily. I prefer my Vit.D level to be at the top of the range, my rheumy simply suggests reducing my dosage for a while if the level goes over. It is actually a myth, too, that everyone can synthesise sufficient D3 from exposing themselves to sunlight. There are many who lead a wonderfully sunny outdoor life in various parts of the world who are still low in Vit D. Unfortunately this vitamin, a hormone, actually, is not stored, so has to be supplemented.

Also to be borne in mind is the danger of over-supplementation, as Vit.D toxicity is an ever-present consideration. In addition, Vit.D needs adequate K2 and magnesium to be fully and correctly utilised, although K2 should not be taken by those with certain conditions and on certain meds such as warfarin. Medical advice should always be taken, and drug interaction researched before embarking on any otc course of treatment, however harmless it may appear.

Polaris profile image
Polaris

Thank you for your reply Partner20. I agree absolutely, having researched and taken extremely high doses in he past that healed more completely many after effects of lifetime accidents 🤗

KnitSewPurl profile image
KnitSewPurl

Vit D3 comes in 3 forms tablet, soluble and spray.

Chris21 profile image
Chris21

after reading everyone’s comments, all I can say is I must have a good rheumatologist! Vitamin D3 was one of the first things he prescribed in 2016 and at every appointment asks if I’m still taking it as it’s very important. I thought he was making a fuss, obviously not 😁 oh and he also prescribed it for my daughter who has different auto condition.

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