Problems with muscle weakness

[Wytchylady]

I was diagnosed with Lupus in 2014 but have had it for much longer. Myalgia and Myositis have been long standing problems for me. It was Myalgia, muscle pain and inflammation that was more of an issue but over time Myositis has caught up and now in the lead. It's affecting my ability to swallow.I have had physio to help to rebuild some strength but not made much difference. It's getting so I can barely stand, walking is limited. I do chair yoga, use weights .5kg and 1kgm to do some work on upper body strength. I used to swim but hip problems stopped that.

Having Osteoporosis too, damage in my hips and spine got to be a bit careful about how much physical stress I put on joints and spine.

Has anyone found any gentle ways to improve muscle strength? TIA

[Sheole]

I am in a similar situation. I just seen physio last week. I am frustrated as it is such a bumpy ride to try to improve out physical self. Slow & steady. Hang in there.

[JEM23]

Hi Wytchylady, I am experiencing exactly the same, weak legs, hips, knees, shoulders - the list goes on. I think the Covid period didn’t help as my physical activity reduced and for me now that is clearly an issue. So my advice is to try to keep as active as you can, even just gentle walking helps. I know for me it is essential for physical and mental health. Lupus is awful and I wish you luck in your journey. Take care 🥰