Update - starting prednisolone & mycophenolate - any tips?

[Beau2016]

I'm hoping that this makes the beginning of the end for my 2 year long flare.

Consultant has changed diagnosis back to Lupus and added POTs to diagnosis.

I'm starting on prednisolone for 4 weeks and Mycophenolate for 6 months.

I've not taken steroids or any other DMARDs except HCQ in the 7 years since I was diagnosed.

I'm a bit scared, any tips to manage side effects?

I work in schools, I'm worried about infections, should I be worried?

Basically tell me what helps

xx

[Oldbits]

Hi, husband was on both of these for his autoimmune hepatitis, he managed by washing his hands and using copious amounts of hand sanitizer and not touching his face. He avoided public transport, theatres, cinemas etc. It will be hard to avoid contact with children and their coughs etc if they are young (you dont say age range for your work) he didnt catch anything by just being sensible. He also used a lot of factor 50 as he found he got sunburnt quicker. However mycophenolate did give him wind. As for the steroids, he was on them for a couple if years, he had cataracts that came in the second year on them, grew within 3 months caused by prednisolone, so would advise an eye check up if you think your sight has deteriorated just to check if you are on them for a long time. We hadnt realised that was a side affect. But on the whole he felt so good whilst on the medication the side effects where not a problem. As it sounds like you wont be on them for long you may not even get side effects. Hope this is helpful.

[Beau2016 in reply to Oldbits]

thank you that is hopeful, I’ve started the prednisolone but there has a been an issue with prescription and the hospital pharmacy for mycophenolate so still waiting for that. Two days in and I think the steroids are starting to work 🙂🙂🙂🙂