Peripheral Neuropathy & Driving

[skylark15]

Hi, Community.

I am 72 and have Lupus, Raynaud's, Erythromelalgia, Peripheral Neuropathy and Muscular Dystrophy, Type 1.

Neurophysiological testing in 2016 showed evidence of a "large fibre peripheral neuropathy of the axonal type". EMG, also in 2016 showed " relatively mild longstanding chronic neurogenic changes".

I was told in 2017 by my then neuromuscular consultant that as long as I informed DVLA that I'd been diagnosed with Muscular Dystrophy, he was quite happy for me to continue driving. I rang them and they recommended that I submit a letter confirming that advice. I received back (after some time!), a letter from DVLA to say that I could continue to drive. But that was only about the Muscular Dystrophy.

Does anyone else have this collection of conditions? Has anyone else declared peripheral neuropathy to DVLA and if so, what was the outcome? Thanks.

[Barnclown]

🤩good question❣️ Been wondering too…my set of Dx includes sural axonal peripheral neuropathy, EM, severe Raynaud’s ischemia reperfusion injury of feet + SLE, the ultra rare Chilblain Lupus Erythematosus which severely affects the feet, sjogrens, small vessel vasculitis, hEDS & the usual secondaries. I do have a disabled parking badge. but I seldom do drive anywhere anyway

But the other day I read what the DVLA website says about disability & decided I am not officially categorised disabled + my vehicle hasn’t in anyway been adapted to any disability + am functional enough…+ of course don’t have an official Dx like muscular dystrophy, so am thinking I can avoid going into all this with the DVLA.

Now I feel sure your post will help me understand this better, so I’ll be following this discussion with interest

💞💞💞💞 Coco

[Prunes]

You can check which medical conditions need to be reported to DVLA using their A to Z online checker. According to that Peripheral Neuropathy must be reported to them.gov.uk/peripheral-neuropath...

gov.uk/health-conditions-an...

Hope this helps

[skylark15 in reply to Prunes]

Hi, Prunes.

Thanks for your kind and helpful response.

I actually found that link, last night, bit the bullet, filled in the requisite form (CN1),and am keeping my fingers crossed.

Tess

[Prunes in reply to skylark15]

That's good. Fingers crossed for you too and for a speedy response.When I reported my SLE it was more than a year before I got the final confirmation through from them that I was okay to drive. Hope things have improved.