Peripheral neuropathy

[ijeasike]

Hello everyone,Last time I spoke about my neuropathic pain. I finally saw a neurophysiologist yesterday. He did some needle test and another with a tuning fork (that's what ur looked like). So just like the title says. He said I have peripheral neuropathy. He would recommend I increase my Gabapentin and he would schedule for so heat pad procedure to be done in my foot.

According to him my Belimimab infusion are keeping all my organs stable so that's helping with the neuropathy. He said I should call DVLA and inform them of this diagnosis. I guess I will just wait and see how the treatment goes. Barnclown this is the update as promised.

Thanks everyone xxx

[minka]

Where is yours both legs

[ijeasike in reply to minka]

Sorry I do not understand the question

[Barnclown]

🤩many thanks ijeasike! Am so glad your neurophysiology tests have helped sort better treatment out. This is really really good news💞💞💞💞

My neurophysiology tests helped too, finding a specific type of peripheral neuropathy called: sural axonal peripheral neuropathy. I wonder if you’re like me: I find knowing these extra details helpful & interesting. Maybe, if you’re interested, some day your doctors will let you know what type you have too. But the most important thing is that we’re both benefitting from adjustments in our treatments which can hopefully reduce the pain & other problems our neuropathies are causing. 🍀🤞✌️

[ijeasike in reply to Barnclown]

Thank you

[Barnclown in reply to ijeasike]

you’re v welcome 💞…am now hoping you’ll keep us posted re the heat pad procedure: am very curious what this actually is! And I hope extra gabapentin helps

[ijeasike in reply to Barnclown]

Oh yes, I will definitely update you guys.

[theone62]

very lucky he found something, mine is idiopathic so I just have to deal with pain without really knowing what is causing it

[ijeasike in reply to theone62]

Yes I understand that feeling.

[Marge11]

Hi I’m fairly new on here, can I ask if they said what is causing your  peripheral neuropathy. I have been diagnosed with it and my feet and legs are getting worse while I am waiting for a diagnosis of some sort of immune system problem. I’ve just found out it’s not lupus but have been tested for Myosis and waiting for the results. Are you diabetic?? What did the DVLA say?? Sorry for all the questions.

[ijeasike in reply to Marge11]

Don't worry it's OK to ask questions 🤗🤗My doctor said it may be the lupus or a side effects of somany treatments in the past. I am not diabetic but my family has a history of diabetes. I am waiting for the letter from my doctor about the appointment so I can send it to Dvla and they can write to the doctor fir more information. Dr said it won't stop me driving its just the legal stuff.

[dg70]

Interesting about informing the dvla. I may have to look into that myself, I never thought about it but I can see it could be an issue as the neuropathy progresses and safe driving.

[ijeasike in reply to dg70]

It terrified me but the Dr reassured me that he will sign me off as safe to drive.

[Marge11]

Thank you and Good Luck with everything 🍀

[dg70]

Good to know.