quick question

[Tiggywoos]

Hi all

Just a quick one .. has anyone tested positive for Anti OJ antibodies ?

Thank you as always for reading . 🙏x

[Suvi8901]

They are autoantibodies for the diagnosis of Myositis.

Have a read:

pubmed.ncbi.nlm.nih.gov/310...

“…Anti-OJ autoantibodies are rare myositis-specific autoantibodies that have been described to target isoleucyl-tRNA synthetase. …”

BW

[Tiggywoos in reply to Suvi8901]

thank you 🙂

[Energy14]

Hello Tiggtwoos, I hope you are keeping wellI have recently had Myositis bloods taken on 30/5/23 with Respiratory Consultant- referred by Rheumatologist as Chest CT scan showed inflammation in right lower lung 🫁 It takes one month for results as bloods sent off outside hospital.

I also had Repeat Chest CT scan, MRI of my knee on 7/6/23. Reason is because for I have become very sonked - joint pain and weakness, which is different to MCTD, after walking or standing I need to sleep - literally. My fatigue has become exhaustion.

My whole body needs to rest, but on instant vibe. At night time, I often wake with glasses still on my face. Crushing fatigue which stops you in your tracks.

Along with this breathlessness, and chest infections (I do not smoke) and couging up Spurtun) I need to take Prednislone intermittently.

I am awaiting results but Respiratory Consultant believes I have interstitial lung 🫁 Disease- linked to MCTD - Mixed Connective Tissue Dis-order. He explained Fibrosis/scarring on CT scan. Consultant looking for any evidence of ground-glass changes.

Myositis bloods will confirm oxygen levels in body, how tendons, muscles, ligaments are affected. i.e weakness, muscle wasting etc which MRI will also confirm.

I hope this provides some insight.....I will update you, when results are back. Hopefully next week. Respiratory Consultant returns from leave then.

Warm Hugs 🫂

[Tiggywoos in reply to Energy14]

thank you so much for sharing and I feel for you going through this . I can totally relate to the crushing fatigue . It happens when I’m driving too and talking to people . I’m waiting for a follow up appointment with rheumatologist as recently had scleritis. I don’t have a cough but wake up every day with splitting headache .

Look forward to hearing from you next week and good luck 🤞 xxx

[Energy14 in reply to Tiggywoos]

Thank you 😊 🫁🦋🍀🌻

[Tiggywoos in reply to Energy14]

forgot to say I do struggle to breathe at night and often end up lying on my front

[Krazykat26]

Hi Tiggy 🤗Gentle hug to you hun... sounds like you're having a tough time right now. Sending positive thoughts n healing vibes your way lady 🙏🥄🥄💜🌈xx

[Tiggywoos in reply to Krazykat26]

hey angel 👼 I was only thinking of you earlier pyschic 👯‍♀️ .. loving the healing vibes I’ll send over my 🪄 to you too . Stoopid rare antibodies 🙄. How you doing hun ? Big hugs xxxx

[Krazykat26 in reply to Tiggywoos]

I'm better than you are right now 😹It's cloudy here today n much easier to bare. I haven't got any appts for five weeks so it's a celebration in this house! I think I might have overdone it today though n I've got daughter coming tmra so I'll be having an early night. Much love to u sweetheart 🤗💜🌈xx

[KayHimm in reply to Krazykat26]

must be careful of the cloudy skies. My unpredictable flares were after a rare storm in cloudy weather. You would think we would get a break but clouds don’t do the trick.

[Tiggywoos in reply to Krazykat26]

I’ll definitely take those 2 spoons 🥄 🥄 😂😂