Hi folks , haven’t posted for a while - hope everyone is doing ok - my question is I have Sjogens as well as Lupus SLE and I have been using Holland and Barret lemon sugar free lemon capsules for the last 6 months which really help with my very dry mouth but they have now discontinued them so can anyone please recommend a sugar free alternative .
Here is pic of the beautiful Mira, she is almost 3 now - where have those years gone ? I have an app on my phone which turns pets into cartoon pic - very clever 🐶
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svfarmer
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How fab is that app? I love it. Mira is so gorgeous. I hope you find something that helps your dry mouth. I tried cherry saliva chews but did nit like the taste much so now I use sugar free gum and sips of water xxx
Hi, I like Peppersmith Lemon Mints (there are other flavours too) which I get from Amazon. They're sugar free with Xylitol, which is apparently a Good Thing for dry mouths. I'm also quite keen on Sula butterscotch sugar free drops (again, there are other flavours too) from Amazon or Lidl, though that's more to do with sugar/sweetness cravings than dry mouth. x
You can get prescribable moisturising mouth gel or mouthwash from your GP!
It’s called Biotène for dry mouth.
Sugar free.
Alcohol free and antiseptic.
Also available OTC!
Plus drink more water particularly with meals to aid oral digestion especially with carbohydrates: pasta, bread, potatoes, cakes, biscuits etc. With Sjögren’s salivary glands don’t work properly!☝️👆
I get Salivix pastilles, they are sugar free. My dentist told me to suck ice cubes rather than sip water but not very handy if you are out and about. Salivix save the day for me.
Hi I have lupus, not yet been diagnosed with sjogrens, but I get the sugar free pastels, and oralieve gel from the doctors, as recommended by my Rhumatologist, I am pretty sure I have it, dry mouth blisters, croaky voice, can I ask you have you had any problems with your thyroid, I have also been diagnosed with enlarged thyroid, which I'm waiting on an operation TIA x
I get them on prescription but, if I forget to call or our GP is telling us not to call because of shortage of doctors, I have got them on Amazon, chemists do sell them as well. If I get my bloods done at my GP, the nurse can write me a prescription. I hate to be without them. I’ve seen me sticking one to the roof of my mouth during the night as I literally have no saliva some nights and end up waking up choking.
That's one spruced up dog! I get 'HAP+' and 'pur' xylitol sucking sweets from amazon, good flavours with both of them. I can't have any other artificial sweetener as it gives me horrendous gut ache etc. with only three or four a day. Xylitol is not so bad for me plus you have the added extra of it being good for your saliva quality as well as quantity. Of course xylimelts go without saying and I use them if I'm somewhere where my mouth will be dryer for a few hours or overnight as you only need one which lasts a few hours. Peppersmith good too as has been said. You can buy them buy the boxload on amazon which makes them cheeper but they don't last very long when sucking as they're quite small. I don't use chewing gum as those of us with delicate teeth take risks with anything chewy. I have many wobbly teeth just hanging on in there at the moment so I'm extra careful of anything sticky or too chewy. It's sometimes a case of see and try. Be interested if anyone has found xylitol sweetened sweets anywhere cheaper like aldi or lidl? I haven't had a chance to look recently.
I use the sugar free pastilles from Aldi - every kind of flavour. When I get the cough I use the black Jakemans cough pastilles as they help me breathe. I can’t believer there isn’t some drug for Sjogren’s - it’s awful. They have the little boxes of sugar frees by the checkouts at Aldi - I find the mint ones are excellent. Good luck
ingredients listed : Isomalt - Sucralose, flavourings, acids, Lactic acid, Sodium Lactate and Menthol. - I have never had any problems with the menthol ones but we are all different. Xylimelts are best for me at night but I need two now. I put cucumber slices or apple in a glass of water and sip throughout day at home. Biotene products are good cucumber very good kept sliced in fridge and take it in car or apple - both have super liquid in them. I have had to go private now as I have spinal stenosis and local surgery is like Fort Knox you just can’t get a response - he has put me on 3mg of prednisone- what we should produce daily in our bodies- made such a difference to my life!!
definitely- I try to breathe thru my nose but it is so dry it’s painful and nothing helps. I just read about pilocarpine for saliva glands so I will request some.
I use ‘Ricola’ sugar free sweets. The elderflower flavour actually makes my mouth water! Which is a first.
My sjorgrens seems to ebb& flow so maybe I’m just going through a good patch. Dentist prescribed really strong fluoride toothpaste. Which is really strong tasting and leaves me even drier- esp if I follow the instructions of not rinsing after use.
I’ve given up with Gp/ rheum/ ophthalmology- they just keep cancelling appointments. Been 3 yrs since I’ve seen anyone of note. My optician is of more use! Try ricola, come in loads of flavours and are only sweetened with Stevia, which I understand to be far better than any other sweetener. Good luck! X
Hi, I use Salivix spray which the gp prescribed. It says peppermint flavoured but I’ve never tasted peppermint like that before!!! It’s an acquired taste!!! 😂 I also have sugar free boiled sweets from the supermarket, mainly Aldi.
I absolutely love your dog. She’s sooo adorable. 🐶😍 I was wondering if you could give me the name of the app you use as I’ve been looking for a while but there’s so many different ones!!! 😃
Hi, thanks for sharing the app. Yes I have an 11 month old puppy. She’s a Jack Russell with a bit of Parsons Terrier thrown in. She’s our little terriorist!!!
Hi SV. I use similar to what others have mentioned. I also gargle with coconut oil 3 times a day and take my meds with 1/2 teaspoon of it at night. Best MrsMarigold
Hi Svfarmer nice to see Mira again and I hope you are very happy in your first year of married life, Ihave read the comments so far I am surprised that no one has mentioned Pilocarpine tablets I take one 5mg tablet 3 times a day to help encourage the salivary glands to work,it does make a difference I get these on prescription and also on prescription the saverlix (not quite sure of spelling) these pastels are very good suck a couple when I need them they taste slightly of raspberry flavour hope this helps you .
I hope this makes sense as I am not my normal self at the moment just come out of hospital with severe chest infection and still finding my breathing a little bit of a struggle still on antibiotics and 40mg of prednisolone a day and will be on high doses for several weeks so a couple of weeks rest for me !!!! anyway good luck in finding something that helps you xxxx
hi Daniel so lovely to hear from you and thankyou so much for advice I will look into this with my GP . So sorry to hear you’ve been in hospital with a chest infection , take it easy and rest up - lots of love 💕
Sadly Biotene gel did absolutely nothing for me and it cost a tenner ! The xylimelts (prob spelt that wrong ) help a bit at night but I wake up after couple hours when they’ve disolved .
Oral surgeon suggested the same tablet as Daniel takes but I said I’d hold off for a bit as apparently it can make your vision bit blurry and like you my eyes are already dry . Always bit of trial and error as we know 😘.
Good morning. I do not have a suggestion for you regarding mouth logenzes but I wanted to say how beautiful your fur baby is. I have two mini schnauzers and they are so lovely. Always make me smile. Good luck finding an alternative.
ahh thankyou - yes they are the sweetest dogs arnt they - Mira was born right at beginning of lockdown - we also have her mum but anyway she wasn’t socialised properly but I’m so proud of her, I’ve done so much work with her and she is getting better every walk we go on, she’s not so nervous anymore . Would love to see a pic of your Schnuazers, and yes they make me smile every day xx
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