Hydradenitus Supperativa connected to Lupus

[Noseyparker1]

I’d like to ask if anyone here with Lupus has been diagnosed with Hydradenitus Supperativa, I have been told by a rheumatologist I do not have lupus yet I asked a forum on another site mostly American people the same question and I got at least 75% answers of yes , I asked the rheumatologist consultant did she actually know what Hydradenitus Supperativa was she didn’t know , which didn’t put any faith in the NHS my question is if it’s connected in the USA why not in the UK I’ve asked for a second opinion but been turned down

[AgedCrone]

If you search HS…there are lots of explanations.

[Poshcards]

Hi, a big YES!! I had many operations in my early years with it, in my groin and under my arms, they don't perform these anymore, saying its the wrong way to treat it. It is a very debilitating disease and very painful. Speak to your GP, he will know what it is, by the way I find germolene soothes it x

xx

[Noseyparker1 in reply to Poshcards]

hi I should have said Hydradenitus Supperativa then Lupus I’ve had Hs for 34 years and a rheumatologist didn’t know what it was but told me I didn’t have Lupus I’m so scared to be told later in life I’ve got this I think I need to see a Dermatologist to get something in place for the rheumatologist to take me seriously my joints are so painful and I’ve had the butterfly rash but still Im told nothing my dna bloods came back negative so that’s what they are going by thankyou for your earlier reply