LUPUS UK
22,152 members17,569 posts

Is Lupus connected to gluten intolerance?

I've been diagnosed for nearly 17 years but four years ago started having trouble with high fibre food and for the last 2 years have had to live gluten free. Is this common with Lupus or do we think its unrelated. Thanks

7 Replies
oldestnewest

Hi Helen,

yes I read this in other forums and have had the same problem. I have found it really helped to keep off wheat and gluten. I have also recently started a vegan and raw food diet ( with the help of a dietician) and really starting to feel so much better!..don't think I will ever go back to dairy or meat. I do think diet plays a big part in how we feel.

best wishes

x

Reply

I was diagnosed with SLE about 10 years ago and then 3 years ago started having terrible problems with my intestine. Basically I was only renting food for about 18 months! I am now diagnosed as Coeliac and probable Lupus Enteritis. To be honest I think these things are ALL connected since they're all auto-immune issues. A few years ago I had half my thyroid removed as I'd developed a goitre. My rheumatologist wasn't interested as it was unrelated. OF COURSE it was related - it's ALL related...... I think so anyway! It's all part of me after all! Been ok since being on gluten free diet and the good thing about getting a 'formal' diagnosis is that I can get my gluten free stuff on prescription so the annual 'season' ticket covers all those extra prescriptions too.

Reply

Hi davina, has the Gf diet benefited your lupus symptoms & if so how long did it take to notice this?

Reply

It depends on whether it was both Lupus Enteritis and Coeliac or not. I am a lot better since being on GF diet - it took quite a while to kick in though - probably as long as 6 months before I was back to 'normal' (what ever that is!). I had lost a lot of weight prior to going on the GF diet. Sadly, I have now put that back on. I've always known that too much wheat made me bloated and uncomfortable. I used to restrict myself to just one portion of wheat a day anyway a few years ago. It is very nice not to have digestion problems any more - on top of all the other stuff it was hard to take and did get me down.

Reply

Hi helen

I have had similar issues to davina. I was due to have the biopsy to test for coeliacs (which is in my family) last year but became too ill to under go it.

So I gave up gluten as a trail 4 months ago, & sugar more recently, & I try to stick to a raw/wholefoods diet. My gut issues have improved. My lupus is still active, but I realise it is early days to expect a noticeable difference there.

I agree with davina that theses issues are all symptoms of auto-immune disease, rather than separate issues. We really need a multi-displinary team, rather than seperate appointments with consulatnts who only deal with one thing at a time.

Reply

Excellent idea - the holistic view!

Reply

Hi, we have been discussing similar things recently.

healthunlocked.com/lupusuk/...

Reply

You may also like...