I have been experiencing really bad lower back pain one week before my menstrual cycle and also during ovulation for two or so years now .
I also have severe nausea and fatigue along with other issues . I have recently read about endometriosis and I seem to have almost all of the symptoms. Had anyone else with Lupus experienced similar ?
TIA
Written by
Zoekat
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Ah, I have UCTD and had endometriosis when I was younger. The two diseases did not run concurrently but I can tell you how the endo: developed for me if it helps. I used to get terrible pelvic pain before and during my period, by my 20s this developed into deep and extreme pain in one side of my groin, during periods, bowel movements etc. By the time I got to see a specialist I had an 11cm chocolate cyst twisting around an ovary and adhesions to the bowel wall and on the other ovary. Message is, if in doubt, go to the GP and explain your concerns. Don't be fobbed off (I was) to my cost. Let me know if you want any further info: Hope this helps.xx
My one day, I hope, daughter-in-law has severe Endo which she first had symptoms 10 years ago when she was 20, was told it was all in her head, heavy periods, just unlucky, have a baby and that will clear the tubes? etc and is now on wait list ( currently 28 weeks) for the operation to hopefully rid her of this nasty thing. She does not have Lupus, but you really have to be a nuisance with the GP's. Most women's (I think it is predominantly female) journeys are on average 5 - 10 years. I would also keep a diary of symptoms, dates etc. I have seen my son's girlfriend completely bed ridden with it for weeks at a time, trying to pull herself together wondering why she can't be like other girls with "heavy" periods. The most recent symptoms before her recent (six months ago) scan and coloniscopy (1 month ago) were continual bleeding from both orifices. Confirmation that it is invading her bowel and pelvic region. Message is don't leave it. It is a bit like getting an autoimmune illness like Lupus diagnosed. It can take years. I was incredibly lucky, my GP was not happy with blood work over 2 years and followed the Lupus path. Funnily (ironically of course) he was the same GP that actually made the Endo journey for my son's girlfriend. Hope that has been of some help. X
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