finger pads : has anyone experienced an odd... - LUPUS UK

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finger pads

Tiggywoos profile image

has anyone experienced an odd sensation in their finger pads ? Feels bit like I’ve burnt them on oven . I do have raynauds but this feels different . Tips of fingers do have a purple tinge to them but only tips not rest of fingers

thanks for reading as always you amazing people 🐈❤️

16 Replies

Hi Tiggywoos, I have strange feelings under what it feels my nails, like sore or burning sometimes but not on the tips.

Tiggywoos profile image
Tiggywoos in reply to EG74

Yes you’re right it is like under finger nails too x

Tiggywoos profile image
Tiggywoos in reply to EG74

Infusion was ketamine and lidocaine

not my fingers but the tips of my toes feel like that, sort of numb but sore

Tiggywoos profile image
Tiggywoos in reply to suzannah16

Thanks hun . You know what’s it’s like .. you start to question your own sanity 😳xx

Have a look online about erythromelalgia. It can flare up this time of year. It can be very mild or severe and effect more of the body. It might not be relevant to you. The photos online can be a bit vivid in my opinion as I have global EM but the rash isn't present like displayed online. But the sensation of burning is definitely there and is most uncomfortable. Just an idea.

Tiggywoos profile image
Tiggywoos in reply to happytulip

Thanks 🌷. I had an infusion for Erythromelagia couple weeks ago for my feet but didn’t work .You’ve raised interesting point though as my feet started off feeling “funny” and “tingle “ before they turned into E so maybe hands are going same way x

Tiggywoos profile image
Tiggywoos in reply to happytulip

I’m sorry you have global EM 😒

happytulip profile image
happytulip in reply to Tiggywoos

I have lidocaine infusions every six to nine months for it and am on pregablin.

Tiggywoos profile image
Tiggywoos in reply to happytulip

Did the first infusion work ?

happytulip profile image
happytulip in reply to Tiggywoos

Yes, but they have definitely got better and more effective over time. I couldn't weight bear before my infusion. Once I've recovered from the horrid side effects I have significantly reduced pain for months.

Tiggywoos profile image
Tiggywoos in reply to happytulip

That’s great I’m so glad it helped 😊

EG74 profile image
EG74 in reply to happytulip

I have erythromelalgia in my hands, this is one of the symptoms I told my rheumatologist I have in my hands that turn red and hot. I didn’t know the feeling under the nails is also due yo erythromelalgia. What is the medication that you take for it? What is that infusion Tiggywoos? I only take HCQ since April.

Tiggywoos profile image
Tiggywoos in reply to EG74

Sadly no medication for E as gabapentin and pregbag made me feel really low in mood .I’m on Mepacrine and hydroxy which helps with rash and knee /wrist pain but nothing else xx

Tiggywoos profile image
Tiggywoos in reply to EG74

Sorry EG74 I’ve answered for happy tulip ..

happytulip profile image
happytulip in reply to EG74

I have lidocaine infusions for EM. I'm not saying the sensation under the nails is definitely EM, just an option.

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