Summer is coming! LUPUS FRIENDS We DON’T get protected from our God of Sun 🌞 DON’T expose yourself too much outside.

[Mei4u2c]

Hi everyone! This is Mei. I have joined the group since 2015. I haven’t been updated anything much because I’m still battling with my complications Lupus for 22 years. I recently have loss a lot of hair, (this is ONLY from one wash) I feel so depressed each time I go get my hair washed. I asked my family please let me shaved but they all said NO. Heart, Lungs and Kidneys are the most common for Lupus to attack. Now I have fluids in both of my lungs. (left side has collapsed too much water) I can’t even take deep breath, it hurts when I breathe, It hurts can’t sneezed 🤧, I can’t cough…my chest hurt, you all can imagine how that was and new syncope episodes (fainted with no sign) I hit my head on the bathtub, I blacked out in the kitchen while washing dishes, I fell backwards and I have nothing to hold from my back, so my butt went down first then my head on the floor. I crawled up to my room to call my husband my head was bleeding and my butt was hurting so bad. He took me to Emergency. Finally I got 2 stitches on my left head and fractured my tailbone S4. This happened 2 months ago I just got everything healed pretty good. 4 days ago OOPS I DID IT AGAIN😩 this time in the opposite side. OMG 😳. No one knows why I kept fainting (syncope). I quit my job there’s no way I can handle too much trouble for myself. Lupus is scary but you manage it well you can live on like other people. Get more rest and we need to have enough sleep at least 8-15 hrs for me only some time I can sleep up to 3 days just got up find some things to eat and take my med back to sleep get up and pee lol no energy at all … and you’ll never known what comes next. I HOPE ALL MY LUPUS FRIENDS ARE DOING WELL AND GETTING BETTER EVERY DAY 🥰