Cold or what!

[LouLamb]

Hi all,

Hoping it's not just me but has it all of a sudden just gone freezing! I'm changing colour every few minutes. Does anyone take anything for their Raynaud's? I've been given nifedipine 10mg. I never thought it worked much. I don't know if I maybe didn't try it for long enough. I tried to ask about it at my local rheumy appointment on Friday. She just told me you can take 5mg up to 3 times a day. Explained I have 10mg capsules but she did not give me any answers. Also asked when the best time to take it is but again no answer. I never go into their appointments expecting much. It was my first face to face with them in nearly 2 years and all I got was 5 minutes in the room and a see you next year.

[KnitSewPurl]

you are fortunate you had a face to face I have yet to have one. still all silence from them 2years on... try phoning your GP and see if they are any good to get advice. hope you get some answers xx

[Chris21]

Hi Lou lamb, no you’re not alone! I don’t take anything yet for raynaulds but out have come the extra warm gloves, hats, scarves, 2 pairs of socks and everything else to wrap up in. I look a bit odd walking round the house with gloves on 😁

[Bowenlady in reply to Chris21]

Hi, I had extremely high blood pressure. I was given two different blood pressure tablets over 10 weeks. My blood pressure was still too high and my Reynauds was so bad so they gave me a third blood pressure tablet that he said often helps Reynauds. I took them and didn’t believe they worked but after about 5 weeks things did seem to help. Sadly I can’t remember which one it was but it has to be worth asking your GP. I bought a pair of bootee type sheepskin slippers on Amazon they cost about £40 and have a man made sole. They are amazing. I was a bit miffed that they were “old ladies slippers” but what the hell. They are machine washable. I wear them all the time at home as my feet get too cold in socks and shoes. I also have to have an electric blanket on at number 1 overnight to stop my feet getting too cold. Once they are cold it’s a terrible job getting them warm. I have even used the blanket through the summer, with the bed clothes folded in half down my body because the top it too hot. It’s a simple life eh!!!

[Guatmom in reply to Bowenlady]

Could it be Amlodipine? I have high blood pressure and when I started on it my Raynaud’s greatly diminished. I could finally shop on the frozen food section without gloves. My rheumatologist confirmed that Amlodipine was the difference.

[Bowenlady in reply to Guatmom]

That’s the one!