White patch on tongue

[Susieliz39]

Well hello everyone 👋.I hope you are all as well as can be living alongside our Lupus ‘friend’. I haven’t posted for a while as I’ve been trying to come to terms with my ‘new life’ since being diagnosed with ILD last year, going through treatment and having to take ill health retirement which wasn’t in my plan I have to say 🤦‍♀️😊

Well….. I’ve been to the dentist for two fillings this morning 😫 and I’ve now got yet another worry.,. I’ve been referred to an oral surgeon because I have a white patch on the side of my tongue. I’m just wondering if this is in anyone’s experience? I’ve had three rounds of chemo and am currently taking mycophenolate and pred. My dentist said that it’s not an urgent referral and try not to worry but how can you not? My mind has gone into overdrive again!

Take care everyone

Sue x

[Jmiller623]

I have attached an algorithm (courtesy of UpToDate) for how we think about white patch oral lesions. Could be any number of things. Many think cancer but unless you’ve been chewing tobacco or smoking on a regular basis, it is very unlikely. They’ll likely want to biopsy it. Good thing is the tongue is the fastest healing body part because it’s so well vascularized.

I hope you find answers soon and am sending you many well wishes and warm hugs. ❤️xx

White plaque

[Susieliz39 in reply to Jmiller623]

Many thanks Jmiller623 for your reassuring reply 🥰 fingers crossed it is nothing as serious as I’m worrying about. I know this condition can be a result of Lupus inflammation so hopefully it maybe that. 🤞warm wishes and hugs received…..thank you! 😘

[Heatheric]

Hi there, always look for the simplest, most common thing - it's not thrush is it? with your medication and immune issues, it quite possible.

[Susieliz39 in reply to Heatheric]

Hi Heatheric, thank you for your reply. that was my thought too, especially after consulting the Lupus bible! I’ve got some oral antibiotics from when I had my treatment so think I may give them a go. Sue x