Last year I tested positive for Covid 19. This hit me with a super force, it has been a 7 month battle and the dark times were more frightening than I wish to go into. In this my doctor tested my blood and lupus came into the equation.
My family and I were startled by this list of ailments and symptoms of lupus which before 2 days ago I’d never known. I ticked every box and had experienced almost everything in the last 20 years, I’d ignored some, been given wrong diagnoses for others and some I thought were how everyone feels (I am a real tough cookie).
Throughout this I’ve had some great care and have had pulmonary rehab, speech therapy and physio, all of which have helped to build me up a little and build a picture. But I am currently Plateauing at feeling pretty rubbish, every joint hurts, my teeth and I feel like someone has taken out every organ blown it up and shoved them back in, I hurt, I ache and it feels like I’ve elastic band round me restricting my breathing as I just have no room for a big breath.
So lupus gets thrown in among long Covid and I described it to my husband like this... each symptom/ailment is an instrument playing, for 20& years they’ve come and played solo, we’ve even at times had a quartet, but right now the whole orchestra is playing and they’ve invited their friends long Covid who are the local brass band!
This is all new to me, it’s overwhelming, relief in some ways that this may not be “ the new me” when I’m on the correct pathway. But does anyone feel this way or have felt this way?