Gabapentin

[Bronn]

Hi everyone, hope you're all as well as can be. Phew it's been a while. I've bee poorly for months now, 1st flue.... Headache, earache runny nose, vomiting and diarrhoea, yes the hole works. I was too scared to go out and get jabbed as usual. Now since Friday afternoon last week (it's now Tuesday night) IBS flare, lots OT vomiting of bile. Bleeding quite heavily, which does seem to be stopping tonight. I am scared to go out but need to see gp but also scared to let anyone into my home, but I have no choice will be contacting gp either tomorrow or next day. (need to plum up the courage)

I take GABAPENTIN now I've been getting involuntary body jerks and hands shaking. Since being ill I've reduced gabapentin and jerks have stopped. My question is has anyone had similar symptoms on gabapentin?

I'd like to say a Happy New Year to everyone, surely it has to be better 🤞💐

[DRunnerchick]

I don’t have lupus ( stiff person syndrome) but developed jerks consistent with myoclonus that we’re getting more and more violent/frequent. My neuro wanted to weed out whether it was a symptom or from drug toxicity from the gabapentin. I’ve been on 300mg morning/afternoon and 900mg at night for 5 years. He took out my afternoon dose on a trial basis and it has made a difference.

I still have spasms and stiffness, which are part time of my condition, but the jerks are fewer and softer by far and it has been less than a month.

D🏃🏽‍♀️

[Bronn in reply to DRunnerchick]

Thank you for your reply. Stay safe

[DRunnerchick in reply to Bronn]

You as well. I hope that was helpful. I know my gabapentin dose is not particularly high, as the Max daily dose is 3600mg, but my body is perhaps tired of many things just now. It has been a good Med in the past to help quell my neuropathic pain. If lowering the dose can achieve the same thing since they have finally figured out most of my clinical picture, I am fine with less. I’m still not squared away on my treatment plan so all bets are off as of yet. 🤷‍♀️ Take care and stay safe as can be. 🍀🌈🦋

D🏃🏽‍♀️

[Bronn in reply to DRunnerchick]

Than you, I really appreciate you getting in touch. 💐

[smudge in reply to DRunnerchick]

Oh wow thats interesting DRunnerchick and something I will try to remember to keep in mind as I've been on it for a few years now and I usually take 300mg 4 times daily increasing slightly when required so again well below the maximum dose but it suits me.

[DRunnerchick in reply to smudge]

Smudge,

Gabapentin is a good drug. It has been good for me and served me well. But, like any pharmaceutical, they do have side effects and interactions. I am also on topiramate, baclofen, duloxetine, and several supplements for multiple conditions.

Autoimmune and neurological conditions, especially lupus which can be both, can affect any part of the body. There are the usual, “more regular” parts, but then there are the cerebrovascular, CNS, nephritis etc. It’s crazy. It’s a hard specialty too. Just keep it in mind. Any time you experience new symptoms, it’s best to review them with your doctor. Take care. 🌈🍀✨

D🏃🏽‍♀️

[smudge in reply to DRunnerchick]

My meds used to be reviewed yearly once upon a time but not for years!!

[Jumper99 in reply to smudge]

My pharmacist where I get all my prescriptions reviews my meds annually over the last few years. (Not the GP any more)

[smudge in reply to Jumper99]

No they don't either anymore! I have found in the last ten years it's all a bit of a battle in everyway and you have to learn everything about you and almost fight for anything. I don't think the system is good for people with invisible disabilities even work, well that's my experience anyway!

[Jumper99 in reply to smudge]

I certainly found that over the last few years you really have to fight for absolutely everything from the GP or the consultant. I must just be lucky with my pharmacist although I think they get paid to do it. X

[Bronn in reply to DRunnerchick]

Thank you so much

[smudge]

Omg sorry to hear that Bronn! How awful for you but you must call the doctor today and tell them all your symptoms and also about your anxiety with going out and letting anyone in too. I know these are difficult times but you must get help and advive.I take gabapetin and have for a few years now but I am fine with it, I do suffer with IBS and have for many years and it hasn't made any difference there.

You mustn't suffer like that please call you doctor. I do hope you feel better soon x

[Bronn in reply to smudge]

Thanks smudge, phoning gp in the morning 🤞

[smudge in reply to Bronn]

I am glad and like I say when you get to talk to the gp let them know everything as well as your feelings x

[CecilyParsley]

Hi Bronn, please, please tell your GP about everything. You are suffering and need help.Surgeries are well geared up now to protect patients. I have been five times since March for bloods, flu jab and GP appointments. I was so impressed with the measures they took to keep everyone safe.I have developed a tremor in my left arm and hand but I only take two Garbapentin at night. It has started since I have been on high dose steroids. I really hope that you can be seen quickly. Good luck xx

[Bronn in reply to CecilyParsley]

Thank you, yes I will and I'll post the result 👍

[Jumper99]

Please talk to your GP as soon as you can face it, I think you need their help now. Xx

[Bronn in reply to Jumper99]

Thank you and yes I will

[Josiah150767]

HiSorry, you have been feeling poorly. I have lupus, sjogrens and fibromyalgia. I take gabapentin and I have shaky hands, which I put down to gabapentin and I have noticed that it has got worse since my dose was put up. I am going to ask my go to change as the gabapentin is not getting on top of my nerve pain. Hope you feel better soon🌻

[Bronn in reply to Josiah150767]

Thank you, I will phone gp tomorrow. Take care 💐

[shouty]

Hi Bronn yes I got jerks when I first started taking it for neuropathic pain. It gradually diminished