Confused : Hi! I have blood result, maybe someone... - LUPUS UK

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Confused

Robertales profile image
12 Replies

Hi! I have blood result, maybe someone could give an opinion? GP said it’s probably coincidental. Can it be coincidental?

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Robertales profile image
Robertales
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12 Replies
KayHimm profile image
KayHimm

Do you have symptoms? Did he say why he ran the tests?

Robertales profile image
Robertales in reply to KayHimm

He ran the tests because of my thyroid symptoms and I have positive thyroid antibodies. I don’t have rush, but I have white/ blue fingers when I am cold, I am tired, I have tension in neck muscles which later goes into headache for a year about ... I am only 30

KayHimm profile image
KayHimm in reply to Robertales

I bet he wants to watch you. You don’t have specific symptoms of systemic autoimmune disease. But these illnesses are unpredictable. Report any symptoms to your doctor.

Sounds like you have a good doctor. It is important that he/ she observe you over time. That helped me a lot when I was like you.

K

Robertales profile image
Robertales in reply to KayHimm

Thank you for your response, he ordered some general blood test also for next week, maybe it will tell something more. What symptoms did you had in start?

KayHimm profile image
KayHimm in reply to Robertales

Fatigue, thyroiditis, elevated ESR, anemia of chronic disease, dry eyes and mouth.

Seeing patients over time is critical with these autoimmune diseases. The doctor will get to know you.

They can do more tests and possible make referrals if your illness revolves.

I was sent to a rheumatologist after a year and a half. He said I had « autoimmune tendencies » and they would be watching me. Seemed crazy to me but that is good practice. They were eventually able to diagnose.

Just come here with any questions. We can’t diagnose but can tell you our experience.

Good luck.

K

Robertales profile image
Robertales in reply to KayHimm

I have fatigue and thyroditis also, but Monday I am seeing Endo, so he will tell me my diagnosis, but from all the results , I have underactive thyroid with TPO antibodies . Hopefully everything will sort out soon, as I feel tired and drain, and have no idea what to do, bad these thoughts not knowing what’s wrong with me, drives me crazy.

KayHimm profile image
KayHimm in reply to Robertales

Hope that consultation really helps you. Your fatigue could get lots better when they get your thyroid functioning.

miccika1 profile image
miccika1

Sounds very much like a typical MCTD, did you get a referral to a rheumatologist? If not please ask. Yes it can be coincidental bit with your symptoms of reynaud and positive ANA and RNP it fits well together for a mild MCTD. Again a lot of people have these antibodies and dont have symptoms so you need to be followed by a rheumatologist to get the full picture. If you start treatment early maybe you will feel better very soon instead of dragging non for years and waiting to get worse symptoms.

Robertales profile image
Robertales in reply to miccika1

I don’t have referral, but after my general blood, I will ask . Yes, if it’s not coincidental, it would be much better to be diagnosed early ...Thank you, for your response

miccika1 profile image
miccika1 in reply to Robertales

Absolutely. Even things like increasing your vit D can help you in disease progression if taken early. Did you have your vit D checked? With MCTD it often comes low.

Robertales profile image
Robertales in reply to miccika1

I didn’t check nothing, only thyroid function test and antibodies, I hope I will get some more answers next week, as I have routine blood test ordered.

I had low vitD and low iron in past... it’s also common in thyroiditis ...

TEDDYM profile image
TEDDYM

Serum pattern speckled - from labtestsonline.org/tests/an..., states:- Speckled—associated with SLE, Sjögren syndrome, scleroderma, polymyositis, rheumatoid arthritis, and mixed connective tissue disease. I would definitely, ask for a referral to a rheumatologist for further investigation.

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