Help for all

[Vsully]

Lupus

Hi all,I'm vince I was diagnosed with lupus a over a year ago and also have been suffering from a decomposed liver level 4,I suffer headaches,memory loss and many more,would like to hope I can get and give some support

[Spanielmadlady]

👋 welcome aboard Vince.lots of support here from some lovely very caring people xx

[SurferGuy]

Welcome Vince. And great to see another fellow male here too!

There's plenty of support, guidance and advice on here, so please do feel free to seek any support you need.

[Spanielmadlady in reply to SurferGuy]

Any idea how many men are on here ? I know it mainly affects women but regardless of gender we all endure this illness x

[Vsully in reply to SurferGuy]

Hiya surfy 🙂,have you been on here long then,do you no if spicey foods are also a no no for lupus

[svfarmer]

Hi Vince welcome to the group - mostly women on here as it’s less common that men get lupus but there’s lots of people here with lots of experience x

[Vsully]

Thankyou all for your responses, I didn't realise that it affected women more then men but hey I'm sure yous lovely ladies can keep my spirits up when feeling low,which I'm some cases is more often,although im not to sure if it's because of lupus or my liver disease x

[Spanielmadlady in reply to Vsully]

90 % of lupus sufferers are women.garlic and onions are a couple to avoid and chilli seems to irritate my stomach now x

[svfarmer in reply to Vsully]

Oh yes us ladies will definitely cheer you up when your having a bad time of it - I’ve never noticed any specific foods that flaire my lupus up - I can recommend bone broth though, I’ve been taking it for about 8 months now and definitely seen a difference in my symptoms x

[Vsully]

Yes I seem to get a groggy stomach when eating currys etc!,is this to do with lupus then,

[SurferGuy]

I'm Indian. There's no way I can avoid onions, garlic or spice! LOL!

But seriously, I'm not altogether certain any foods affect me. I've been paranoid in the past as I've read mushrooms can trigger a flare, so avoided mushrooms for ages (and to be honest, I'm not a big fan of mushrooms anyway). But for me, garlic, onions and spice is a must for all my foods - Mexican, Italian, Spanish and Indian.

You can always do a trial and see how you feel after eating small amounts.

[Vsully in reply to SurferGuy]

Yes thanks I've never really thought about what foods to avoid,I shall now delve deeper into checking before eating,but I do love a good curry,so surf if you have any recipes you can send me,I'd love to try them 🥵 as far as mushrooms go I wouldn't no mate as never liked them,x

[SurferGuy in reply to Vsully]

I have lots of recipes. I'll try and post some on here this weekend.

Currys I tend to make make as I go along. The basics of any curry is garlic, onions, ginger (I use very little ginger paste as I don't like ginger that much and HATE the raw stuff), and the basic spices - garam masala, tumeric, coriander powder (again, no real coriander as I hate the stuff), a little cummin and chilli powder. Then your main ingredients. I'm vegetarian so use potatoes, cauliflower, peas, courgettes... and pretty much any vegetable. Not a big fan of paneer, so try and avoid that. Salt, pepper to taste.

Gosh, reading that back I sound like the most weirdest of Indians!!! Don't like raw ginger. Don't like coriander. Don't like paneer. And TBH, up until a few years back, couldn't take too much chilli!!!!! LOL!

[Vsully in reply to SurferGuy]

Woww that is the most unusual recipe from a Indian man I've ever heard from lol,but thanks and look forward to trying it out,lol

[Vsully in reply to SurferGuy]

Hey surf dude lol,hows you doing today apart from blooming weather

[SurferGuy in reply to Vsully]

I'm great as I have no work I'm going to go and finish off a great documentary I was watching last night until I fell a sleep on the sofa. It's called Sunshine Superman and is about base jumping. It's currently free on Amazon Prime and I highly recommend it.

And how are you doing?

[Vsully in reply to SurferGuy]

Good on you a nice relaxing day for you then,I was the same yesterday, but finally got hospital app today and I also received my lupus pack on behalf of this site worth every penny x

[SurferGuy in reply to Vsully]

That's brilliant. How did the appointment go?

[Josiah150767]

Hi Vince,

Welcome to the group

[Vsully in reply to Josiah150767]

Thankyou Josiah,I look forward to getting to no more about people here and making friends,x

[ange726]

Hi Vince. Welcome to the group. Specific foods don't affect me but there are different types of lupus. As for the memory loss, my nickname by my sisters is 10 second Tom (from a film called 50 first dates). I can be in mid sentence and totally forget what I was saying. Its frustrating but I try to laugh it off and write everything down. In the lupus community we affectionately call it Lupus Fog. There are so many amazing people in this group that can help with advice and support any time of day. Keep smiling. 😃

[CecilyParsley]

Welcome Vince, you will certainly get some support and a few laughs and smiles along the way here 🙂