I was meant to have a telephone appointment with the Dr from Guys hospital last week Thursday. I had been looking forward to the appointment as I have not been great recently. Lots of swelling in hands, pain, stiffness and fatigue. My call was meant to be at 4:30pm. I finished work at half 4 that day had my phone with me only to discover a voice message left at 3:42pm from him. Mad does not even begin to describe how I felt. The message he left was just so stupid as well. 😡🤬
So today I managed to get a telephone call from the nurse at Guys. I always seem to find the nurses so much better than the Drs. She is now going to talk to the Dr and try and get me some help. I was literally at the end of my breaking point. So glad i had the telephone call with her today. I'm not eagerly awaiting a call back at some point to see what she or the Dr decides.
In other thoughts. Tomorrow is 3 years since i passed my driving test! I cannot quite believe it was that long ago and how many opportunities it has opened up for me. It defiantly makes me realise that no matter how bad of a time I am currently having it will get better and I can achieve more.
I do hope everyone is doing well at the moment. I hope once I'm settled back into work I can be back on here a bit more. Honestly without this Lupus family I wouldn't be here 😀
Written by
LouLamb
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30 years since I passed mine Loulamb and I would be lost without my car now I cant walk distance or carry things very far. Im sure you will achieve so much more in years to come 🙌 Do you use compression gloves for your hands? Keep smiling sweet pea 🤗 x
Fantasic happy memories.you sleep in them and they help with swelling.i got given a pair by OT to help with the pain I get in my hands.i also wear them if I'm knitting.they are also useful as an extra layer under gloves in winter x
How very frustrating for you with the missed call sorry your not feeling too great at the moment, hope they get you sorted soon. I’ve been driving 34 years and it’s my life line - I have a friend who has never driven who I’m trying to gee her up into taking lessons as her life would be so much easier xx
Hello Lou,it was so nice to read your post,I'm new here but judging by the sound of the support you get makes me feel that I'm glad I've joined,as not really good at this kindve stuff thankyou
How frustrating for you that the Doctor called too early. I guess they are working in unprecedented times. Like you I find the nurses amazingly helpful. I miss driving so much, it gives you so much freedom.I had to stop driving four years ago when my knee started to dislocate, making it unsafe. I hope that you get the help you need swiftly
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Neurologist appointment left me in peices
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