Manchester consultants or private consultants?

[Cazza_dow]

Hello all,

Hope you’re well and staying safe.

I’m just writing to ask if anyone has any recommendations for a good lupus consulatant/rhuemy in or around Manchester? NHS or private?

I’m currently being seen at the Kellegen centre at MRI but I always see different consultants there (the last 6 months, with my 2 years of auto immune issues)

I’m not yet diagnosed with lupus but that is what they’re looking for. Saying all looks like it but I just need a biopsy on my rash as my bloods are “normal” I’ve been diagnosed with Raynauds and hyper joint mobility so far, not sure about the last one haha.

I’ve been sent the shielding letter back in April but no diagnosis and I just feel frustrated (as I’m sure everyone is! Diagnosis or not, and of course with shielding...)

Just feel abit lost and would like to see if there’s any great consultants near me which can help

Thanks in advance x

[Oshgosh]

I go to Wythenshawe hospital.i have long disease,lupus and RD.

When. I go for just a lung appointment,I. can see different consultants.

However,they all deliver the same information. If I have a joint consultation with rheumatologist and ILD consultant,it’s always the same rheumatologist,sometimes a different lung consultant

Auto immune disease is really difficult to diagnose.

I’m afraid it’s a bit of a waiting game wished these disease.

I’m sorry I can’t be any more help.

[Vifi]

Hi Cazza,

I’m under Prof Chinoy at the BMI Alex Cheadle (he also works at Salford Royal Hospital). I highly recommend him. I have been diagnosed as having an overlapping DM / lupus condition (muscle biopsy is scheduled next). He is a very thorough and understanding consultant. He works closely with Prof Ariane Herrick at Salford Royal who specialises in Scleroderma & Raynauds.

If you did go private and your diagnostic tests can’t be carried out at the BMI Alex, he will refer you to Salford where they charge your insurer directly. Very swift process.

Diagnostic testing & results took just under 5 weeks (CT, MRI, nail capilloroscopy, nerve conduction test, blood tests plus cold challenge test).

Hope this info helps you!

Vicky

[bookish]

Hi, interesting. I was a possible for APS and asked for suggestions and was told to get a Kellgren referral. Have seen the same person, but not got anywhere and not over happy. Have you been checked for that too? Hope you find someone x

[ricky_chotai]

If you are under kellgren Prof Bruce is the lupus expert

[Paul_Howard Partner LUPUS UK]

Hi Cazza_dow ,

The Kellgren Centre for Rheumatology is actually a Centre of Excellence for lupus, so I am sorry to hear that you are not satisfied with the care you have been receiving there. I can appreciate your frustration at seeing a different consultant each time. Do you have a named consultant who is primarily responsible for your care? Could you ask to speak to them?

[ThaisXG]

I'm desesperate to get a referral to kellgreen, you're not getting much help?