High risk letter

Received my letter today, 3 months of not going out!!! Needs must I suppose. On Monday my GP phoned me to say I wasn't getting a letter as I wasn't classified as high risk. Tuesday morning a letter from NHS Scotland telling me the exact opposite. Now to read it all and take it all in. Looks like I'll be getting home visits from the nurses from now on too. How's everyone else getting in with their letters

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🙏Oh Kitman, I hope this keeps you safe, and I pray we will all be back to our normal routines before we know it.

[Wendy39]

That’s confusing! But it doesn’t surprise me.

I run a support group and have asked everyone to let me know when they get their letters.

4 out of over 50 have.

We’re in Wales.

I’m just glad that LUPUS UK have been updating us throughout this, so we all knew to self isolate before the letters arrive.

We have had a little joke about having a sweep stake to see how long the letters take to come out to everyone.

I hope you get the help you need at home.

I’m trying not to think in weeks. Take each day. Step by step.

Best wishes

Wendy

[maggielee in reply to Wendy39]

Hi

Isolating my possible letter (hope its not another bill)...tempted to look at the letter to join our letter sweepstakes...

I agree we are so far behind here, if I already wasn't off sick from work & keeping up on HU & news I would be oblivious to self isolating for 3 more months & to start to prepare for it.

I raced to work with permission from HR (they were informing staff to stay at home to self isolate if at risk for health reasons) to enter my studio by myself to grab books, equipment, my laptop, etc. with the hope I might get better & be able work from home or at least study at home.

A long slog.....m

[Wendy39 in reply to maggielee]

As for the sweepstake, I’m wondering if they’ll get them all out by around the 8-9 week mark. You? xx

[maggielee in reply to Wendy39]

Ohhhh got my letter, couldn't wait to quarantine the letter any longer, so put some gloves on & opened 😷🙌

It's official I am sick !!!!! And need to self-isolate for 3 months (or more)... Do you think my recent A&E visits & hospital admission would have already implied to me I was sick 😉, but will be good to have for work.....

Thhhbe letter was Billingual, of course, dated 25th & received yesterday the 31st March.

It hasn't done anything for me (the letter) as I already scrambling to figure out how & where to get food deliveries...supermarkets were a no go & there are limits on orders as it is hard to piggy back on other folks orders (at least my neighbours don't drink milk, my main nutrition)...

Yah did find local butchers doing food runs for us with a wide variety of goods...

So I will survive 💃💃💃...ml

[Wendy39 in reply to maggielee]

Glad you’ve got it. Think you’re 5th. A lot will need for their employers.

I have got a Tesco slot, after setting my alarm clock for 11.50pm as they apparently release the slots at midnight. I had to wait in an online queue for 45 minutes before being able to book the next available slot 20th April - 3 weeks time! Luckily the local independent shops, like butchers, post office & stores and farm shops are all doing free home delivery. It’s good local businesses can get the trade and I’m hoping people will remember them when we get back to normality. M

I actually noted in our Tesco delivery that I’m self isolating and also that we weren’t hoarding, just a family of 5! The amount of food my 3 pesky kids eat is unreal!!!!

Stay safe.

Much love

xx

[Wendy39 in reply to maggielee]

Maggielee

Did your letter come from your GP surgery, Rheumatology Department or WAG?

xx

[maggielee in reply to Wendy39]

WAG.....

Will mention to neighbours who are helping us this week, to tell them to tell tesco's when ordering they are helping us shield....was worried that quantity would be a concern...

Ta ml

[WinterSwimmer in reply to Wendy39]

I wrote to Eluned Morgan (our local Welsh Assembly Member for those not in Wales) about this and was told the letters should arrive today. Not a massive amount of faith in this - but looks as though at least one person has received theirs... I’ll be waiting for the postman with baited breath....

[Wendy39 in reply to WinterSwimmer]

Please keep me updated.

Only 5 in my group so far.

They are so slow!

Wendy x

[Shann07]

Hi I was in the same situation as you. First I was told I was ‘moderate’ risk but not going to receive the 12 week shielding letter, I was so worried as I work for the nhs and needed this letter to allow me to stay at home. I have sle, lung issues etc so know Im high risk!! But my Rheummy took me off a immunosuppressant a few months back, as I developed a wee skin cancer due to the drug (basal cell). Anyway my GP phoned my Rheumatologist who said I am definately high risk and I need the 12 week shielding letter, which Im collecting today from my GP 😑. I think whatever criteria the governtment set out for these letters somehow skipped over sle, as an extremely complicated autoimmune disease itself. It shouldnt just come down to what immunosupressants we are on, as alot of us have serious organ involvement. I have a chronic PE, restrictive lung disease, lung scarring among other overlaps, and the GP really wanted me to ‘sheild’ for the 12 weeks as Im very at risk but because the criteria didnt match she couldnt give me the letter. My advice to anyone is to try to contact your Rheumatologist who knows you best, GP’s are not specialists in our conditions. Obviously everyone knows to use their common sense and isolate at this time, but I needed this letter for work and really had to fight for it.

[KayHimm in reply to Shann07]

Such good advice. It just shows you that you cannot capture every patient in a table of risk factors.

[Kevin53]

Here is a link for Wales

phw.nhs.wales/topics/latest...

[maggielee in reply to Kevin53]

Thanks Kevin, here the Welsh link for support for extremely vulnerable, my letter links into local authority working with local voluntary organisations..

gov.wales/get-coronavirus-s...

ml

[chrisj]

Had mine this week although I've had most of the information by text from NHSN right through March.