Doing well: I was being proactive; eating well... - LUPUS UK

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Doing well

NeuronerdDoaty profile image
22 Replies

I was being proactive; eating well, resting, yoga, HCQ, you know what I mean. I made it through the driving distances for my fathers passing, therapy sessions, memorial. I was careful with the food that was brought.

I had a horrible painful night last night. My ankles are swollen. I can’t make a fist. I feel like I got hit by a truck.

I don’t feel steady enough for yoga. I tried plain stretches. It’s cold outside. Should I attempt a short walk well dressed? I don’t want pain meds. What I have generally gives me a migraine and then I’m days if not weeks getting it together.

Walk in cold? Other suggestions?

Thanks!

Doaty💛

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NeuronerdDoaty profile image
NeuronerdDoaty
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22 Replies
Krazykat26 profile image
Krazykat26

Sounds like u gotta rest right now Doaty...listen to your body..u will know if u can..or can't do whatever u wanna do!!

Rest n recouperate..it sounds like you've been really busy..n what with the festive season n that..u really can't do much else than take time out 💐💐

Don't be hard on yourself..now's the time to take good care n be gentle n loving to your body..rest with your feet up as much as u can.

You've had stress stress n some more stress..of course you're gonna crash at some point..now its time to take care of yourself!!

Right now I'm stretching across the pond to give u a gentle soothing cyber hug...😔🤗💜. You're not alone 😽😽xx

NeuronerdDoaty profile image
NeuronerdDoaty in reply to Krazykat26

You’re so kind Kk! I’ll take that hug. 😘

Krazykat26 profile image
Krazykat26 in reply to NeuronerdDoaty

🤗🤗🤗xx

in reply to Krazykat26

Maybe your’s is the right coarse.

Roarah profile image
Roarah

When I an having a bad day, I get painful spasms on my right leg post stroke at times, I usually walk in my house instead of going outside. This way I can stop and rest if it is too hard. I put on a comedy and walk around the house briskly and go up and down the stairs as many times as I can handle trying to get to 30 minutes but sometimes stopping if I needed to. This keeps my exercise momentum up even when struggling. So sorry about you dad and I hope you feel better soon.

Xo

NeuronerdDoaty profile image
NeuronerdDoaty in reply to Roarah

I remember my left leg doing that after my stroke. Ugh!

I’ll walk around the house a bit. A comedy sounds like a great idea. Thanks!

Spotty-ewe profile image
Spotty-ewe

Hi Doaty, I’m so sorry to hear about your father’s passing. A very sad time and a lot to cope with on top of your physical problems. Please accept my condolences.

I totally agree with Kat about taking it easy, listen to your body and just do what you feel like doing exercise wise. I sometimes dance to my favourite music for some exercise as no bending is involved if I’m feeling unsteady. And if the weather is milder walking is good.

Keep your chin up. Hugs 🤗😘💕

NeuronerdDoaty profile image
NeuronerdDoaty in reply to Spotty-ewe

I could dance a little. No one is watching. Sounds like a good idea. Thanks!

Spotty-ewe profile image
Spotty-ewe in reply to NeuronerdDoaty

Exactly, dance as though nobody is watching! And if you need a partner, let me know. 🤗😘💕

NeuronerdDoaty profile image
NeuronerdDoaty in reply to Spotty-ewe

😁👍

Doaty, I am so sorry to hear about your father’s passing. Such a rough thing to go through. My dad passed almost 22 years ago and I still miss his sweet face and how much he loved and cared about me all my life. I still get teary thinking of how much I miss him, but have every hope I’ll see him again.

This is a rough time for you, and as we all know, stress is a trigger.

I would say that if you feel up to it, go ahead and bundle up and go for a walk. I think it will help with the emotional drain, give you time to think things through, and give you a peaceful chance to connect. I could be wrong, but that’s what I think.

I’ve never been an out doors jogger. I don’t mind on a treadmill, but on hard concrete it hurts my joints. After my father died, I tried holding it together until I finally had to get out and run, run, run🏃‍♀️ 🏃‍♀️ like a crazy woman! It helped me a lot.

Again, I am so sorry for what you and your family are going through. My sincerest regards, 🙏

NeuronerdDoaty profile image
NeuronerdDoaty in reply to

Thank you. You’re so kind. I’ve been holding one of his old jackets off and on. He was the best man in the world.

I did take the dog out. I walked around the yard. I just ache all over but after the silly movie, a few dances with myself and a brief trip outside I hurt less.

I’m sure we’ll see our dads again. ❤️

in reply to NeuronerdDoaty

Amen! 🙏 too important in our lives not to be a part of our forevers.

I’m here if you need a shoulder.

Horsewhisper profile image
Horsewhisper in reply to NeuronerdDoaty

Bravo Doaty! Good for you, lots of helpful suggestions and a good dose of your own humour - I hope you feel better soon x

Hamptons profile image
Hamptons

I think your body is saying time for you. Emotions and holding it together during a terribly sad time will have affected your body. It is saying stop, breathe and reflect and that it is time to start to grieve. Hot water bottle, tens machine, lavender bath whatever you do to just stop. Sometimes Lupus is there to help we have a gift of being able to be In tune with our physical side, even if it like a cranky old woman who pokes her bony fingers in our ribs.

Remember the joy of your father’s life and rest. It’s time for you now - you were there when people needed you. Now stop.

Gmagolf profile image
Gmagolf

Not an expert, that’s for sure, but if your body tells you to slow down for a bit you need to listen to it. I find when I totally overdo it is when I have a flare. Get some rest.

NeuronerdDoaty profile image
NeuronerdDoaty in reply to Gmagolf

You are so right💛

Ebaymama profile image
Ebaymama

Very sorry for your loss! Rough no matter our age or their’s. Glad you have wonderful memories & had a good man you adored:). Mine has been gone for 17 years in my mid 30’s. He was a brilliant surgeon and how I miss him each time I see someone in a lab coat or scrubs which is quite often in our lives:)

So hard when our mind says - Yes! and our body wisely says - Rest!! Sounds like a push of fluids and legs up and above your heart to reduce inflammation are annoyingly in order. Hard to keep a brilliant mind like your’s idle!

Try journaling all the things you have accomplished in this life changing event. Not keeping score but letting your mind know that right in front of you is the amount you have over done and the amount you must undo by rest.

If you have Netflix, join me in watching all the episodes of ‘Outlander’. Love the opening song!!

NeuronerdDoaty profile image
NeuronerdDoaty in reply to Ebaymama

It’s a good one isn’t it?!

I have to get back to work but I’ve been binging Broadchurch with lots of fluids and crackers. I may have picked up a little virus around all those people. Everyone is so sick.

My lab coat goes on at 4am. I really don’t like that time on the clock.

I’m sorry for your loss as well. Thank you for your kind words. I think I’ll sit a lot tomorrow.

💛

Ebaymama profile image
Ebaymama

Oh, goodness. Have yet to discover anything good at 4:00 am other than going to bed at the hour.

Sounds like a virus indeed. People are germy things in tight spaces for us with not great immune systems. Recovering from a wide excision surgery for a stage 3 Melanoma in my left upper arm. Had a skin graft from left thigh & Sentinel Biopsy. The graft did not take so have a lovely 3” x 1/2” hole in my arm. It is 4 weeks old. Started at our hospitals Wound Center ... they are clean out champs with that scalpel! Hoping my ins. will approve a Wound Vac machine soon.

Had many appointments this week to makeup being out for surgery .. the cranky desk clerk at the dentist had a fresh new cold. Bless her heart hacking up a lung tonight. Probably karma for my thinking evil yet amusing thoughts about her!

Wishing you great amounts of sitting still in your lab coat making money and serving a great purpose. I ‘retired’ early from teaching courses in music online for our local university due to health. If your lab coat was when the sun was shining would be happy to take a turn:)

Be well!

NeuronerdDoaty profile image
NeuronerdDoaty in reply to Ebaymama

I pray for that wound vac machine soon!

I think like that too. Had my new grandson in my arms 8 months ago. Took him out front. The neighbor comes over and touches the blanket to see his face. We talk a bit than she tells me she just got out of hospital for pneumonia. I know those thoughts well. 😊🤢

I tried to retire. It lasted a few weeks. I don’t really deal much one on one with patients in the hospital anymore. I was bored with just research at first since I’ve mostly done both all the time but I’m used to it now. I hope this will help get some better help for A/D and PTSD. I’m in the basement. Lol!

Take care of that wound. 💛

Doaty💛

Ebaymama profile image
Ebaymama

Here is to less germy people in the basement!!

Thank you!!

Ann

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