Hello Everyone,
I haven't posted for a few months now but I thought I should come on and see how you were all doing and to give you a bit of an update.
I finally have my lupus diagnosis! It's taken nearly two years to get there. I am secretly feeling a little smug that I was right about my autoimmune condition all along.
Since I last wrote I have had several scans and procedures to rule in or out various conditions. It hasn't been an easy journey to a diagnosis but I guess many of us autoimmune warriors don't have an easy ride. I feel very fortunate to have a great team of doctors looking after me in Leeds. I also have a superb and very supportive GP.
My lupus has been playing havoc with my body for several months now. I seem to be in a permanent state of flare. It has been very difficult to cope with the pain at times.
My doctors started me on Methotrexate on Friday. I haven't been on it long enough to know if it will make a difference to my symptoms. I really hope it works, though. Even if it allows a reduction in my daily morphine dosage that would be a plus.
OK, enough of me rambling. Stay positive everyone...I'm sending you all gentle hugs x
What,s worse lupus or rheumatologist
Your route to diagnosis
Thank you for supporting me after unsatisfactory appointment with allergy consultant recently
