Lupus Medication Availability in a “No-Deal” Brexit

[Paul_Howard]

Hi everyone,

We've received a few enquiries about how lupus medication supply in the UK may be affected by a potential "No-Deal" Brexit.

Whilst there is a lot of uncertainty about the outcome and any impact it may have, we've presented answers to some questions in a new article available on our website at lupusuk.org.uk/brexit/

We will continue to update this article as new information/advice becomes available.

[EOLHPC]

🤩👍Thanks V much paul 👏👏👏👏👏

[Happykins]

Thank you Paul x

[suzannah16]

I saw a list from a northern irish pharmacist and all 4 of the tablets I take are on the list. I've already tried other tablets and brands and these are the only ones I can take.

[Paul_Howard Partner LUPUS UK in reply to suzannah16]

Hi suzannah16 ,

I think I have seen the list that you mention. I haven't included a link to it because I am unable to verify their information so I cannot confirm how accurate it is.

[fabwheelie]

Thanks Paul_Howard

[maggielee]

Thanks Paul...my sister suggested I ask for a longer prescription i.e. 3 month to ensure coverage as she did for a serious illness years ago & was agreed. Ask my gp & that was a laugh & a no...👎 worth a shot....ml

[loopy-lou]

Thank you so much for the information. I had been wondering.

[Spotty-ewe]

Good to know! 👍🏻 Thanks Paul. 😊

[chrisj]

Thats pretty much what I read from Pharmacy2U. Thank you it confirms what they have said.

[luupysue]

Thanks Paul.

[yz8182]

Hi,I have Sgrogrens and rheumatoid athritis.I am prescribed methadone for a chronic pain condition.The drug prescribed is Physeptone 5 mg.This is no longer available and a new substituted.This has now become scarce and a three week wait is now the norm.The only alternative is methadone liquid.I have spent days looking g online and calling all pharmacies in my area but have been unsuccessful.The liquid makes me drowsy very quickly also it's difficult to go out and about .I have e mailed the drug companies but no help at all.I just don't know what to do.I cannot travel abroad with a large glass bottle of methadone!I would become any help or advice ,kind regards Tina

[Paul_Howard Partner LUPUS UK in reply to yz8182]

Hi yz8182 ,

I'm afraid I don't have any information about the availability of this specific drug at the moment. I am however aware that there are a number of different drugs that are experiencing world-wide shortages which are completely unrelated to Brexit. Many Governments are developing new strategies to ensure consistent supply of essential medications because the current system is too fragile. That doesn't really help much in the short-run though.

[yz8182]

Thank you Paul,it is just so frustrating!maybe my local mp should be put in the picture?

[Paul_Howard Partner LUPUS UK in reply to yz8182]

It certainly couldn't hurt to make them aware of your concerns. Please let us know what response you receive if you do contact them.

[avionne]

Very informative as always paul. Thank you