Pain at back of head is my steroid injection wearing off?

[Sallmell]

Hi all, thank you all for making me feel so welcome. I posted for first time about 6 weeks ago regarding diagnosis which has been 4 years and still no diagnosis but being treated as if lupus with steroid injectuon and hydroxychloroquin. This has really helped with the pain and fatigue but 6 weeks down the road I am noticing a little bit of pain and swelling in hands again, fatigue returning and the sharp pain at back of my head which usually for me indicates a flair. Does anyone else get a sharp pain at bottom/back of head. The glands at back of head swell too.

So can I ask does anyone else experience this and also how long would one expect steroid injection to last?

Always grateful x

[junemc]

Hi

I am still trying to get a diagnosis of lupus although my symptoms and history of auto-immune diseases all point to it. When I get a flare it always starts with blinding headaches different from my usual headaches. These headaches are at the back of my head and make lying down, even on a very soft pillow, painful. It almost feels as if I have been hit on the skull and have a lump which is painful to the touch (although I can't feel a lump). I can't bear any pressure on my head and even the slightest pressure can make me feel nauseous. It sounds as if you are experiencing much the same symptoms as me. It would be interesting to hear if other lupus sufferers have experienced the same symptoms. I have never had steroid injections so don't know how long the effects of these last so can't help you there but hopefully you will get replies from people who do know.