Hi guys nervous as I have my appointment tomorrow with doctor Cruz for a second opinion from doc kaul.
Hoping this man will help but most of all be more interested in what I have to say.
This is my last privet appointment as I can’t afford it and all my mums inheritance has now gone and I’m just taking it away from my kids.
So if he can’t help me I fall back into the mercy of the nhs.
I’ve written it all down and I have all my notes and brain scans with me.
How is everyone ?
Jade xxx
Best of luck for tomorrow Jade. I’m seeing a rheum privately on Thursday - fingers crossed for yours x
Let me know how Thursday goes I’m sure you will have a better result as my mum said money talks xxx
Please dont be nervous Buckley, dr de Cruz is lovely. I saw him many years ago. I must say though, I am a bit confused as to why you would go from dr Kaul to dr de Cruz for a second opinion. These two not only work together and have for many years, but take part in studies, research, clinical trials, etc together all as part of prof Hughes team. They are both excellent doctors, I have seen them both, but what I'm trying to say is that they are very similar in their views and diagnostic abilities. Hope it all goes well for you, good luck.
Oh really I thought dr Cruz was ‘better’ ? I didn’t really get much of a result from doc kaul I hope it won’t be the same today he suggested aps but my bloods where negative 👎 he also wouldn’t see me on the nhs which was no help to me atal. I don’t know why I have no luck or why they all seem disinterested in my brain lesions and problems. If they think it isn’t autoimmune they need to say as my neurologist thinks it is xxx
Hi Buckley123..I have seen both Drs I the past at Guys St Thomas..both Drs on the NHS and they were brilliant..my actual appointment was with other doctors but on 2 occasions they were brought into my examination for future advice..I have an indifferented autoimmune..Hughes.. and Psosaitic arthritis..they were very through and allowed me to ask lots of questions.Please be well prepared for your appt..i always have how I'm feeling now..history and any photos my phone.this was some years ago however I still attend clinic every six months..I hope your appointment goes well..please try not to worry you are in very safe hands..I did have long waits at the clinics however you might not with it being a private appt..take care..😄🦋❤
Thanks I will do xx
Oh Buckley you have a name, Jade 😘 so nice to not call you Buckley.
Wishing you all the best. I do hope it works out well for you . Will be thinking of you. Xx
I know Buckley is the name of my dog 🐕 😂🤦🏼♀️when I first joined I didn’t know what to expect 😂 but my name is jade 😂❤️
Woof..woof!!! 🐕🐩🐕 Our cyber names do make me chuckle!! Good luck with the appt jade..it sounds like you've got it all in hand..notes n everything..do let us know how it goes!! Xx
I’ve not been reading posts regularly, but why are you going privately if you don’t mind me asking?
It’s a good question really I had a hard time doctors taking me seriously because 2 months before my mum died and after I paid for a mri and found the brain lesions I was diagnosed with ms just the same as my mum. Considering she was 47 when she died I went privet as I wanted to limit damage.
Ms was ruled out and left in limbo all my bloods are negative xx
Hi Aden good luck, I saw dr dr de Cruz fir many years he is excellent in term if dx I was sorry I had to stop going to the Louise coote unit as I have found it the best. I saw dr de crus privately and then swooped over to the nhs thus was 20 years ago it was the best money I could have spent the write everything down in terms if symptoms etc ax you do forget and want to bake sure he gets to know everything your experiencing good luck you will be good hands x
So far They are 1 hour behind 🙌🏻👎
Hope it all went well. Dr DCruz was always lovely and thorough when a saw him. He also was happy to see patients on the NHS once he had seen them.
Hi thanks for your reply yes he’s sending me over to the nhs and is listening to me which I’ve never had. He thinks it’s possible to have uctd xx
That's great news. All we want is someone to take us seriously. I remember him saying to me, no that's not stupid what else has happened, I need the full picture.
Teeth tomorrow 
Continuity of care if dr leaves St Thomas'?
Hospital appointment tomorrow.
