So after rheumatologist gave me a diagnosis of fibromyalgia tennis elbow and mechanical back pain I have since been told I have CFS/ME. I saw dermatologist this week about rash on my face and pin prick rash on both arms and chest his verdict......capilaritis and erythematous rosacea ....treatment..... 'well I could trial you on hydroxy chloroquine but will it make difference? Maybe not so let's just leave it alone'! I'm not sure I have much faith left in so called specialists that can't wait to get you out the door. Out of sight out of mind certainly springs to mind just left to muddle on through on my own. Who would have thought that these people must have originally gone into the profession wanting to make a difference to people who are suffering. Well ain't no one making any difference on my life except adding to the stress.
It's good to let off steam so thanks for reading x
Written by
whiteyswifey
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I am so sorry you have been really ill and that they have treated you so badly by the medical profession it’s so upsetting as these people are supposed to be helping you. I have M.E (CFS), Fibromyalgia and lupus. It’s good they have recognised and given you a diagnosis. I would keep a diary with photos and get your medical records as this may help you in the future. The problem is the medical profession is full of people who can’t be bothered and treat us so badly it’s awful as your looking to them to get you well. At least on this site there is always someone who will listen and can advise us. I would definitely try the lupus medication as for some people it works wonders. I am on it but for me it’s earky days. I was told if they gave it to you and yoir symptoms calmed down and it was suspected you had lupus due to blood tests and symptoms they would look at a diagnosis of lupus. I wish you a great weekend. Rest assured that this is such a great site and there’s always someone on here to help. Take care. Elena
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