A cure for burning feet?

[suzannah16]

After months of constantly burning feet my feet are now frozen, all down to the weather. The only way I can warm them up is sitting in the car with the heater on feet. I feel contrary, always complaining about my burning feet and now they are frozen i'm still complaining. Be careful what you wish for, hope you are all cosy during this cold spell.

[eekt]

My feet are still sweating while feeling like two lumps of ice 😕

Why don't dogs' paws freeze ? What a delighted fuzzy face in the snow 🤗

-4° degrees and freezing fog here...time for a stroll to get the blood flowing 😵

Stay warm xxx

[maybehope]

I suffer with the same! I did ask the Consultant if it was Erythromyalgia and he just said possibly but didn't say anymore!

[suzannah16 in reply to maybehope]

mine too, I doubt it is even mentioned in my notes as a possibility

[Barnclown]

Oh suzannah...living with simultaneous raynauds & erythromelalgia is horrific. Am TOTALLY feeling for you

Took 7 years for my rheumy to get to know my mix enough to try me on her best bet: low dose losartan. Over a year of this has JUST taken the edge off my severe chidhood onset raynauds to make these temps relatively bearable, WITHOUT making the erythromelalgia worse (unlike 3 days on nifedipine which did EXACTLY the opposite)....but few rheumatologists seem to have the confidence to even BEGIN to tackle this unusual combo..

I can give you links to various really helpful sources of info...but i have a feeling you’ve already found these in my posts on RP+EM...and besides: some of the links show above right in the ‘Related Posts’ space on this page 😆...but please do let me know if you are interested in more links...this is defintely one of my haha specialist subjects...not by choice, rather out of DESPERATION! So far there is of course no cure for this horrendous burning stuff, but we can more or less figure out how to make it a bit more liveable...

THANKS for another great photo...GOSH: you’ve got a lot more snow than we do here in East Anglia! But who knows what we’ll wake up to tomorrow...

XOXOXO Coco

[Barnclown in reply to Barnclown]

PS i recently found this Mayo Clinic video...the Mayo has a specialist Erythromelalgia clinic:

youtu.be/zYQW-xGjw38(Not working as expected?)

[suzannah16 in reply to Barnclown]

That snow was a few years ago it's just icy out right now. I have a podiatrist appointment in 2 weeks so maybe they can figure out my feet.

[Barnclown in reply to suzannah16]

Good plan...if they look blank when you mention simultaneous RP&EM, maybe show them this accessible helpful official guide:

erythromelalgia.org/resourc...

I gave it to my senior NHS podiatrist at our last appt cause she knew nothing about this unusual combo...and she seemed to be v glad to have it

Good luck XOXO

[Cas70]

Wow, I thought it was just me ! When my feet burn I use Deep Freeze pain pads or their spray. Usually at night.

Frozen during the day now so slip those hand heat things into a pair of big slipper socks. When sitting I had my feet resting on a hot water bottle but a pal just bought me a heated slipper - pop my feet in that - bliss - look them up on line and the best of luck.