REALITY: TRUTH..... - LUPUS UK

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REALITY

Naz2005 profile image
10 Replies

TRUTH.....

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Naz2005 profile image
Naz2005
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10 Replies
Penguintaz profile image
Penguintaz

Hey Naz.

Another round of posts from you, are you alright?

Beauty starts on the inside, I do get how things can affect it. I currently have bold patches on my legs and arms (very attractive), it's like "why don't you just wax what is left" but I never wax in winter. So gonna leave it till it's warmer and cover up those legs of mine in cozy and cute trousers or tights. I know I still have a great smile and my personality will never leave.

I hope you are doing alright X

Naz2005 profile image
Naz2005 in reply toPenguintaz

Thanxxxx aw bless you xxx

Krazykat26 profile image
Krazykat26

Hi Naz

I really feel for u at the moment and I'm sending u gentle hugs. U are letting us know that your having a really hard time but if u could be a bit more specific about what's happening we would be able to offer advice n support..I know it's hard but we are all lupus warriors here n u are part of this tribe!! Like it or not!!!

I totally understand how u are feeling because I became very depressed when I was diagnosed with lupus..I couldn't get out..was in loads of pain..more like agony actually..open ulcers on soles of feet n both hands. I've had horrendous rashes and often been asked if I'm contagious. I wasn't on the internet and had no contact with the outside world..I just went within and wanted to die..when I woke up I was disappointed that I had woken up..so I decided that I would do the job n planned to take an overdose the next night..I was determined at that time..that was my decision. When I went to do the deed alone at night..some little voice spoke n told me if that's what I wanted to do then ok, but before I do think about it..what will hubby find when he comes in with my meds? He'll be first on the scene..n then how will he tell my daughters..how will my daughter's tell their children..I would have made everyone's life a complete misery!! It was then that I realised that I've got to fight this condition for me AND for my loved ones!!

So I'm here to tell u that u will find a way through the forest of despair..I think that u are probably grieving for your old life..but hey that's cool!!

I seem to remember u posting that your on steroids at the moment..they are heavy meds n I've been trying to get off them but everytime I get down to 10mgs I flare up again!! They really affect my mood..angry then tearful!!

I've probably gone on a bit but I want u to know that your not alone..keep posting n ask for advice n the chances are u will be able to get educated about what you're dealing with..we are all in the same boat sailing choppy seas. Xx

Naz2005 profile image
Naz2005 in reply toKrazykat26

Hi still on steriods face is like a balloon GP startd calling me moon face 😫😫😫20mg of steriods hydro & myphonlate thanks 4 your advice xxx

Buffy14 profile image
Buffy14 in reply toNaz2005

Your GP sounds very childish and unprofessional .

Krazykat26 profile image
Krazykat26 in reply toNaz2005

U are experiencing side effects from the steroids I haven't had that particular side effect though. However I would say that one of the doctors at my surgery made me feel really angry once n I don't see that particular doc now so it is possible to see another doctor at the practice..what that doctor said to your daughter was totally unprofessional in my opinion. X

Naz2005 profile image
Naz2005 in reply toKrazykat26

Thank you totaly agree xx

Loobie72 profile image
Loobie72

Beauty comes from within, stay strong, we are all beautiful, only hate shows as ugly 😊

Naz2005 profile image
Naz2005 in reply toLoobie72

Thank you xxx

Loobie72 profile image
Loobie72

Very welcome xxx

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