Hello everyone, I’m new x

[Elishaannxx]

Hi, I’ve been unwell for a while and I developed a rash in my face that looked like a butterfly rash so went to the doctors twice and they said nothing then the 3rd time I went and she thinks it is lupus well I’ve never heard of this before and I’ve been really unwell with it x

[whisperit]

Welcome Leeshalou123

That sounds a rather rapid diagnostic journey! Have you been referred to a rheumatologist? They are the specialists for auto-immune disroders like lupus and should be involved in assessing you and determining the most appropriate monitoring and treatment. Let us know how things go anyway x

[Elishaannxx in reply to whisperit]

I’ve got an emergency appointment tomorrow to go see my immunology specialist and then I think there gonna refer me to a rheumatologist i will mention that to them anyway xx

[whisperit in reply to Elishaannxx]

Ok, so long as you are happy that you are getting the care you need x

[Elishaannxx in reply to whisperit]

I will let you know what they say tomorrow, have you been diagnosed with lupus xx

[whisperit in reply to Elishaannxx]

I have Undifferentiated Connective Tissue Disease as my primary diagnosis, with myositis as the main complication

[Elishaannxx in reply to whisperit]

Aw, well I’ve been poorly ages I have loads of stuff wrong with me as separate thing and all the things I have wrong with me is all in with lupus there all as a whole in lupus and I’ve on 25 tablets a day and I’m 19years old, so I think they will take me off them and give me something for all of them with it being lupus xx

[Elishaannxx in reply to Elishaannxx]

I’ve been going to the doctors like every week and I’ve been going for like a year every week as I’m always poorly I’m never right and the doctors always put it down to a viral infection when it’s not so my mam booked to go see this really good doctors that’s diagnosed me with my allergy’s and that so we went and she looked at me and asked me some questions and mentioned lupus straight away so she emailed my immunology specialist and red flagged it as emergency and I’ve got an appointment tomorrow x