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LUPUS UK
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Fed up

I’m writing that at 4:30 am this morning .

I took my injection on Thursday and yesterday I forgot my folic acid because I went out for a meal with work and didn’t get in till gone 10 last night .

My sick feeling has gotten worse and worse since 2am this morning. I’ve not been sick twice. I’m not sitting in bed and think any minute I’ll burst into tears. I can’t cope with this anymore. .

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LouLamb

Sorry 😐🤗🤗💗💗😘😘

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I was sick twice at half 4 this morning . I’ve now been sick 3 times at half 7ish . Why are things that meant to make you better actually make you worse . I won’t miss the folic acid again .

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Are you sure you've not picked up some sort of food poisoning bug &

it 's nothing to do with your medications? Why don't you call the people you ate out with & see if they are OK?

I'm sure missing one folic acid pill would not cause you to be Vomitting so soon so often after missing it.

Try to keep well hydrated & rest over the weekend.........hope you're better soon.

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I felt sick like this week but took the folic acid and was never sick .

I was just putting it down to injection because when I took it a few back I had similar episode to this once .

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Bet you won't forget it again will you?

But as I said it might not be the lack of FA, so be positive & have a good weekend,

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I won’t forget it again trust. Waiting for it to settle to take it later ?

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Yes..if I were you I'd wait until you feel as if you're not going to vomit & can hold down some liquids & then take it,

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Thank you I’ll wait

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There is a bug going round from Devon to London me in Suffolk hope you’re soon better x

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I think you meant this reply for LouLamb didn't Your?

This system is getting worse..you never know where your reply will end up,

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So sorry dear 😊🌸🌿🦋

When we’re chronically ill with conditions difficult to treat and deal with it taxes us to the limit frequently. Don’t feel alone there are many members who suffer along with you.

I consider my multiple conditions my enemies and refuse to let them beat me into giving up. I can’t take any pain meds because of GI complications and when all of my problems decide to flare simultaneously it makes me pray for death to relieve my agony. Then I remember that is letting the enemy win so I fight back by declaring I’m not giving in or up and I do overcome it all.

That is never easy but if we don’t fight for ourselves who else can???

It isn’t fair that we have been given this road to travel in Life’s highway but it is our journey.

It helps to try to stay positive and not let the negative in because that causes erosion and will eventually lead to destruction.

Remember to fight the good fight.

You will always find supporters here to help you through the worst of things because we all have been there ourselves.

Please hang in there and remember that I/we all care about you.

🤗🌸🌿🤗 😊💗😘🙏

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Thank you so much . This morning I went into a pitty party for myself . Why me ? What did I do to deserve this ?

I know that others out there dealing with far worse .

Reading your words have really given me a mental boost. I don’t think I’d be here today without the help and support of the lovely people on this group x

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I agree dear. We have to support each other because we are the only ones who truly understand what we’re going through. The medical staff mostly know ABOUT it from the medical books. Family friends and acquaintances only see the affect so all of them can’t really help us like our fellow sufferers can. Don’t feel bad about your pity party dear. We all need to have one when necessary as it is a part of our grieving process. We have lost so much and undergone a metamorphosis into our new reality which isn’t easy on anyone of us. We just have to take things minute to minute or day by day and not forget to count our blessings for what we are able to do.

You will survive because you are stronger than you realize.

Please take care and have as painless a weekend as possible dear.

🌸🌿🌸🌿🌸🌿🌸🌿🌸

🌿🌹🌿🌹🌿🌹🌿🌹🌿

🦋🌿🦋🌿🦋🌿🦋🌿🦋

🌿🌺🌿🌺🌿🌺🌿🌺🌿

🌸🌿🌸🌿🌸🌿🌸🌿🌸

😊🌸🌿🦋 🤗💗😘

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What are you talking about ?

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I posted on a wrong thread for some reason. Must be the disease.

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Oh ok

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I have not been well, either. It could be this heatwave/stress.

Take care.

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Bless you 🤗🌸🌿🦋

🤗💗😘

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Like honeybug says, we all deserve a pity-party every now and then. And even though we are only connected by the magic forces of the internet, we are with you! In fact, right now, I am raising a glass (of chai tea!) and sending wishes for a more restful day x

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Thank you .

I think a pity - party is good once in a while . I’m going to ring the help line in the week and discuss it with the nurse . Maybe a lower dose to start with or anti sickness tablet as well might help me .

I took the folic acid last week and felt sick till the Sunday. So maybe anti sickness tablets would be a better option as well as folic acid .

As I said earlier I wouldn’t be here today without the help of all of you. It’s been such a mental help to me.

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Had a 3 hour nap . Woke up was sick again but just watery yellow . At 3:20pm had my folic acid with my yoghurt and had 2 grapes after for something to munch on . I still have the sick feeling hoping it will stop . 2 grapes and a couple month full of yoghurt is all I’ve eaten today .

I know don’t know I also feel sick because I haven’t eaten but I’m no scared to eat now .

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Sorry you're still feeling so poorly Lou. For an entirely different reason (migraine) I get very sick but when I think I am able to manage to keep something other than water down, I try plain crackers or dry toast - just a few little nibbles at a time. It usually helps to settle things down and allows me to tolerate any meds that I need to take. I hope you continue to get some rest - be kind to yourself today xxx

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Thank you . I’m at the end of fuse at the moment . It just seems to keep going on and on . It’s driving me crazy .

I’m annoyed how this illness has ruined my weekend .

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Lou Lou Lou.. Lou here..I've forgotten folic acid before hun and it doesn't cause you to feel sick as I asked my rhumy nurse..folic acid just runs along side your injections to help them work ..so please stop freaking out hun..you'll be ok.i know it ain't pleasent for you..it may have even been something you ate whilst out. Ask doc for some anti sickness tablets just to have in on case..they really do work..I hope by now your feeling better..poor lass your going through it ..hugs x

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Does it not ? I thought the folic acid helped to not feel sick.

After I took it I just had a sick feeling . I’ve just tried some toast and 30 mins later was sick a tiny bit .

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Don’t know if it will help you but I have a spoon full of manukau honey as there are study’s done that suggests it’s good when you are feeling weak and on cemo all the best 🤡

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Not fan of honey 😂 I guess if it helps it helps .

I’m hoping and praying that it will all be gone by tomorrow the actually vomiting .

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I know it’s no help or consaltion but I took my injection yesterday and luckily I’m just fealing washed out with the usual migraine but not sick 🤢 really hope you start to pick up and feel better very soon

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Me to ! I had forgotten the folic acid I’m not sure if this has made me vomit or if it’s something else going on . People keep telling that forgetting folic acid doesn’t cause you to vomit

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Hope you are feeling better today.

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I’ve woke up not feeling sick at the moment. I am ever so achy in my arms and legs now . I hope I’m not starting a flare up. Going to find the pain killers

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Oh Lou, how horrible for you 🙁 It’s still early days for you so hopefully it will settle and like others have said it might be a bug rather than the drugs. How often do you take folic acid? My rheumy upped mine to 4 x a week recently and I’ve just been in hospital (with constant vomiting 🙄) and they upped it to every day. I was the same as you and not sure if the vomiting was the methotrexate or a bug but it was after my 8th injection and I’d only felt a bit sick/vomited a couple of times after it and this was really violent vomiting, every 10 minutes for 10 hours 🤮. My rheumy told me to go to hospital and they gave me IV steroids, anti sickness and fluids and the hospital think it’s a bug rather than the drug (and they said there is a vomit bug around). Hope so for both you and me because I think this drug will be good for the lupus.

If you can eat a little I do find that settles it a bit and keep drinking.

The hospital have given me ondansetron (anti sickness pills) to have with the methotrexate next time in case it was that so may be worth asking your rheumy. I know other people take anti sickness with it but you may be ok after the next dose anyway 🤞🤞

Hope you feel better today x

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I woke up today and didn’t feel sick but as I move I feel a little bit sick .

I’ve woke up ever so achy and in pain . Hoping not the start of a flare so I’ve just taken a naproxen and see how I go .

I hope you feel better as well

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I get nausea too, I don’t think the folic acid will help with it. Ask your dr for some anti sickness tablets to take as and when . Hope this short answer helps x

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I’m feel better today sickness feeling on and off . Have had awful pain in legs and arms

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LouLamb, I’m so sorry you’ve been feeling so rotten. How much methotrexate do you inject? Also how much FA? I get sick also if I forget mine I take deplin. Have you tried deplin at all it works so much better for me instead of FA.

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I take 12.5 methoject . I think I take 5 mg FA .

I haven’t heard of deplin before ?

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Is that 12.5 mg or mcg? Deplin is the methylated version on FA. I can’t process B vitamins so I have to take that type. I had to have a gen test to find out. It wouldn’t hurt you to try it. I was feeling the same way you are on the regular FA. Just something to think about or ask your Rheumy about. My Rheumy just switches everyone if they are having problems with the regular FA to deplin. It is L methylfolate if you want to google it.

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Also google methylation defect

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Yeah 12.5mg I think . I’ll have a look into it . I’m hopefully get a call back from the nurse today .

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Yes ...I hope you do and hope they can offer some help. Are you still feeling sick? Mine never lasts this long, as soon as I take the deplin within 30 mins or do I start feeling better. I pray you get to the bottom of all this, I’m sending hugs your way.

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I don’t feel sick as much now . I got it sometimes yesterday the feeling.

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I don’t feel sick as much now . I got it sometimes yesterday the feeling.

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